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Question:

{{{Lee Ann and Connie}}}} and {{}} for anyone else who may need them:-) Get/stay healthy, Kathi

Response:

Thanks Rebecca.. I know I feel like a little kid hiding like I’ve done something wrong. But I’ll do it- call and get it over with.. it’s just that this is the third time in less then 2 years. They have been wonderful to me but I can’t imagine in the back of there business minds that this girl is costing us a lot of money without results. It’s been terrible they lured me away from my old company and I’ve been sick ever since I’ve started here. Again thanks for the support I’m being a big wimp ola….took my first dose of 60 mg’s wonder when I’m gonna want to start cleaning??? Yes, a clean house is a good side effect- see there are some! LeeAnn

Response:

"Elucidated"!!!!! Huh??? Hugs, Linda – who’s off to get the dictionary!! <G>

– Hide quoted text — Show quoted text – > elucidated your situation. I’ll cross my fingers that by the time you’re > doctor returns, you won’t need him or her. Isn’t it funny the things we > appreciate, like nearby bathrooms? <g> : ) Reesie > Thanks Maryjo, Sherry and Rebecca:). > It is starting out a bit mild, but lots of the usual, cramping etc. Last > doctors visit was real good with only one ulcer at the anastamosis site. > Don’t know what’s going on, but doc is in Japan for another week. > Just keep on keeping on. Took a warm bath and am going to have a nice cup > of Green Tea. Go to bed and hope I am not comatose at work tomorrow. > Bathroom is 3 steps from my office and since I do "secret" <G> military > stuff only about 3 other gals in the whole section. AAAAHHHH, privacy!!! > But, my mood is foul! Think I’ll wrap some of those hugs around me and > warm > up some more. > Thanks again you guys, the support really does help as you all know. > Connie > Connie > > (((((((((((((((((((((((((((Connie)))))))))))))))))))) > > I am so sorry that you are flaring … go ahead and vent all you like to > me … > > I will listen and understand !! > > Maryjo

Response:

LeeAnn: Don’t be so hard on yourself!!!! You are sick, remember??? I bet if you call your boss and just tell him/her what you have said to us here (can you meet in person?) I bet he/she will be understanding. Many, many people have sick loved ones in their families and can be very understanding, especially when the sick person is trying hard to continue as if nothing is wrong. Perhaps you can work on a different aspect of sales until you start feeling better — might be worth discussing. I wish you luck — I’m a type A too and sometimes I just feel like hiding in bed all day — kind of goes against our nature! ((((((((((((((hugs))))))))))))))) Rebecca

– Hide quoted text — Show quoted text -> Thanks again for all the support and ways to call the doc… I know I shouldn’t > feel intimidated by him- and i usually don’t get this way- ask almost > anyone…hee hee > i guess this disease seems to be so out of my control and it reallly has me > stressed about my job.. I’m just not functioning up to par- over all my normal > But I promise I will call for the files today and call the other two doctors > today see when I can get into one of them- and call my boss one more time and > tell him what’s up- ugg that one i really dread. But I feel like I have to tell > them why my lack of energy just is not there.. I’m in sales so I don’t see them > often just mostly on the phone and your numbers – which aren’t the best right > now, I used to be the top sales person..so I guess i feel like I really look > extra bad. Here I am complaining again. it is so true i feel like I can write > and tell you guys this stuff but anyone else it’s so hard. > Oh do you explain this disease to people and what happens to you? How can I > justify getting paid when I’m not preforming? I’m half temped to take another > job because I’ve felt so guilty about my level of work at this one I want to > wipe the slate clean.. start over.. oh pity party here:( thanks for all the > help….hugs and most of all just reading this pity party stuff!! > Hugs to all others with this lousy sh*tt going on! > LeeAnn who will get her sh**t together today!

Response:

Lots more hugs if you need them Connie! ((((((((((((Connie)))))))))))))))) Take it easy at work — and I’m glad you are being good to yourself. Rebecca

– Hide quoted text — Show quoted text -> Thanks Maryjo, Sherry and Rebecca:). > It is starting out a bit mild, but lots of the usual, cramping etc. Last > doctors visit was real good with only one ulcer at the anastamosis site. > Don’t know what’s going on, but doc is in Japan for another week. > Just keep on keeping on. Took a warm bath and am going to have a nice cup > of Green Tea. Go to bed and hope I am not comatose at work tomorrow. > Bathroom is 3 steps from my office and since I do "secret" <G> military > stuff only about 3 other gals in the whole section. AAAAHHHH, privacy!!! > But, my mood is foul! Think I’ll wrap some of those hugs around me and warm > up some more. > Thanks again you guys, the support really does help as you all know. > Connie > Connie > (((((((((((((((((((((((((((Connie)))))))))))))))))))) > I am so sorry that you are flaring … go ahead and vent all you like to > me … > I will listen and understand !! > Maryjo

Response:

Thanks again for all the support and ways to call the doc… I know I shouldn’t feel intimidated by him- and i usually don’t get this way- ask almost anyone…hee hee i guess this disease seems to be so out of my control and it reallly has me stressed about my job.. I’m just not functioning up to par- over all my normal But I promise I will call for the files today and call the other two doctors today see when I can get into one of them- and call my boss one more time and tell him what’s up- ugg that one i really dread. But I feel like I have to tell them why my lack of energy just is not there.. I’m in sales so I don’t see them often just mostly on the phone and your numbers – which aren’t the best right now, I used to be the top sales person..so I guess i feel like I really look extra bad. Here I am complaining again. it is so true i feel like I can write and tell you guys this stuff but anyone else it’s so hard. Oh do you explain this disease to people and what happens to you? How can I justify getting paid when I’m not preforming? I’m half temped to take another job because I’ve felt so guilty about my level of work at this one I want to wipe the slate clean.. start over.. oh pity party here:( thanks for all the help….hugs and most of all just reading this pity party stuff!! Hugs to all others with this lousy sh*tt going on! LeeAnn who will get her sh**t together today!

Response:

elucidated your situation. I’ll cross my fingers that by the time you’re doctor returns, you won’t need him or her. Isn’t it funny the things we appreciate, like nearby bathrooms? <g> : ) Reesie

Response:

{{{{{Connie}}}}}} I’m so sorry you’re flaring. I hope your situation improves soon. : ) Reesie

– Hide quoted text — Show quoted text -> Don’t let anyone intimidate you. Call and get the records. You’re not > insulting anyone asking for what is yours in the first place. No doctor > should have an attitude about giving you the records. I especially wouldn’t > see a doctor that made me afraid to make him mad. Just my 2 cents. > Connie (flaring and in a bad mood with no room for niceties) > thanks guys- > yes- I’ve got the names of a few others from another UC’er here – but can > you > believe I feel intimidated to ask him for my files- I know he’s going to > have a > big attitude.. and he is very close to my house and hospital. I know this > sounds silly but I don’t wanna urk him to bad for if I have to see him > again. > he’s probably doing what the rest of them would do.. but his ego is just > too > much.

Response:

what if you find the new doctor first and let their office ask for your files? just a thought…..: ) Reesie

– Hide quoted text — Show quoted text -> thanks guys- > yes- I’ve got the names of a few others from another UC’er here – but can you > believe I feel intimidated to ask him for my files- I know he’s going to have a > big attitude.. and he is very close to my house and hospital. I know this > sounds silly but I don’t wanna urk him to bad for if I have to see him again. > he’s probably doing what the rest of them would do.. but his ego is just too > much.

Response:

Connie I take the Bentyl for the cramps .. heating pads work good too and you can sneak one of those to work with you feel better soon

Response:

as you thought. Happens fast, the flares, don’t they? Good luck with the Pred and you know we are here for you any time. If you would feel more comfortable with a second opinion, I wish you luck in finding a wonderful GI. The right doctor seems to make all the difference. I’ll be praying for a quick recovery. : ) Reesie

– Hide quoted text — Show quoted text -> hi all your supporters…here’s my rant > Well I just got back from the GI’s office, the Ego Maniac that he is- he > really thinks he’s special for fitting me in when I’m sick. > He said I just saw you a month ago and you were fine-perfect in fact. I think > he’s starting to think I’m a hyper- condryact spelling??? Anyway he thought he > was just going to tell me what was wrong with me without even looking. I had > explained about the blood being heavy etc.. so he was going to tell me it was a > fissure or hemerroid and send me home. > Then I made a comment about the doing the prep today, that it was a painful > disaster.. and he says " oh you just did the prep without me asking for > it"? I said yes i’ve been bleeding for a month- I figured you’d wanna peek.. > anyway at least he admitted he was wrong when he was done- oh and it’s so > painful without any drugs to take the edge off.. when your flaring bad….. The > colitis is highly active… as far as he could go up and look. > Well he doesn’t think there is enough effidence that Remicade works on UC so he > won’t bend the rule to try it. So it’s back on Predisone for now. I say it’s > time for a second opinion- I can’t believe he actully thought it was tougher on > him to sweeze me in then this disease is on me. I told him to- that I feel more > sorry for me, then he said -oh of course we doctors have a saying that " > remember it’s worse for the patient". Anyway I’m sorry, he sort of fired me up > with his oh poor busy me attitude. > well off to get my predisone, Tylenol 3’s and sleeping pills- oh just what I’ve > always wanted….lucky lucky me.. > Thanks for listening – pray that the predisone works this time without a

Response:

LeeAnn, Perhaps you could just submit a letter in writing to his office (through snail mail) and you wouldn’t have to see anyone or, whatever dr you should decide on will ask for your files for you. I’ve never asked a dr personally for my records. Hugs, Linda

Response:

Thanks Maryjo, Sherry and Rebecca:). It is starting out a bit mild, but lots of the usual, cramping etc. Last doctors visit was real good with only one ulcer at the anastamosis site. Don’t know what’s going on, but doc is in Japan for another week. Just keep on keeping on. Took a warm bath and am going to have a nice cup of Green Tea. Go to bed and hope I am not comatose at work tomorrow. Bathroom is 3 steps from my office and since I do "secret" <G> military stuff only about 3 other gals in the whole section. AAAAHHHH, privacy!!! But, my mood is foul! Think I’ll wrap some of those hugs around me and warm up some more. Thanks again you guys, the support really does help as you all know. Connie Connie

– Hide quoted text — Show quoted text -> (((((((((((((((((((((((((((Connie)))))))))))))))))))) > I am so sorry that you are flaring … go ahead and vent all you like to me … > I will listen and understand !! > Maryjo

Response:

Oh, that’s easy. If you have had any procedures at the hospital, just call them. They can get you the hospital records and any films you’ve had taken. And as far as his office (and I have no idea how big his office is) but if he is in a clinic or multiple person practice, they prolly have a "records" person who will copy it for you. Docs get the request all the time — just tell them you need it for a second opinion (or, if you don’t want to tell them that — tell them your hubby/mother/cousin-the-doc wants to read it. It’s YOUR property! If he is in a single person practice, the same holds true although it will be his nurse or secretary who will copy it for you. You shouldn’t have to talk to the doc at all. Good luck! Rebecca who will call the office for you if you want <G>

Response:

Oh Connie! Here’s a hug: (((((((((((((((((Connie)))))))))))))))))) Sure hope you feel better soon! Rebecca

Response:

((((((((((LeeAnn))))))))))))) I think your instinct to get a second opinion is a good one. Half of managing this darn disease is finding a doc who you can *partner* with in educational, emotional, and medical support. Good luck finding someone and I am doing the "pred working dance" for you. Rebecca

Response:

(((((((((((((((((((((((((((Connie)))))))))))))))))))) I am so sorry that you are flaring … go ahead and vent all you like to me … I will listen and understand !! Maryjo

Response:

LeeAnn, Oh you poor poor dear. Prednisone. Well, I hope it’s not too bad for ya. And as for him….you need to tell him to stick it. Like we don’t know when we’re in bad shape. Duh. Staci

Response:

{{{{{{Connie}}}}}} Sorry to hear that you’re flaring. Drink a cup of peppermint tea and take a nice warm bubble bath with a really good book and hopefully the pain will go down the drain. Feel better soon. — Take Care, Sherry

Don’t let anyone intimidate you. Call and get the records. You’re not insulting anyone asking for what is yours in the first place. No doctor should have an attitude about giving you the records. I especially wouldn’t see a doctor that made me afraid to make him mad. Just my 2 cents. Connie (flaring and in a bad mood with no room for niceties)

Response:

thanks guys- yes- I’ve got the names of a few others from another UC’er here – but can you believe I feel intimidated to ask him for my files- I know he’s going to have a big attitude.. and he is very close to my house and hospital. I know this sounds silly but I don’t wanna urk him to bad for if I have to see him again. he’s probably doing what the rest of them would do.. but his ego is just too much.

Response:

LeeAnn, by pass him for your medical records by telling the office you want a complete copy of your medical files for your personal records. They have to give it to you. They can get nasty and charge a fee, usually small unless your chart is huge. Call and also send it in writing for your records. You can tell them you will send them a letter for the request. Does any of your other docs have these medical records? If you need more help getting them email me, this I have done. UM MOM Susan

Response:

Leeann, Sorry to hear that you have to go back on pred. Hopefully it will do the trick for you. Yes, it sounds like it’s time for a new Dr. Have you checked the list on CCFA? Maybe you could find a wonderful new Dr. {{{{{{Leeann}}}}}} — Take Care, Sherry

hi all your supporters…here’s my rant Well I just got back from the GI’s office, the Ego Maniac that he is- he really thinks he’s special for fitting me in when I’m sick. He said I just saw you a month ago and you were fine-perfect in fact. I think he’s starting to think I’m a hyper- condryact spelling??? Anyway he thought he was just going to tell me what was wrong with me without even looking. I had explained about the blood being heavy etc.. so he was going to tell me it was a fissure or hemerroid and send me home. Then I made a comment about the doing the prep today, that it was a painful disaster.. and he says " oh you just did the prep without me asking for it"? I said yes i’ve been bleeding for a month- I figured you’d wanna peek.. anyway at least he admitted he was wrong when he was done- oh and it’s so painful without any drugs to take the edge off.. when your flaring bad….. The colitis is highly active… as far as he could go up and look. Well he doesn’t think there is enough effidence that Remicade works on UC so he won’t bend the rule to try it. So it’s back on Predisone for now. I say it’s time for a second opinion- I can’t believe he actully thought it was tougher on him to sweeze me in then this disease is on me. I told him to- that I feel more sorry for me, then he said -oh of course we doctors have a saying that " remember it’s worse for the patient". Anyway I’m sorry, he sort of fired me up with his oh poor busy me attitude. well off to get my predisone, Tylenol 3’s and sleeping pills- oh just what I’ve always wanted….lucky lucky me.. Thanks for listening – pray that the predisone works this time without a

Response:

LeeAnn, I agree, maybe it’s time to get another opinion. This guy thinks he’s too special!! Sorry about the pred – I know personally that it’s no fun I’m keeping you in my thoughts and prayers. And of course, dancing a happy dance for you <G> Hugs, Linda

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