cipro and uc
Question:
Rebecca, If you and your family do come here over the 4th of July how long would you be here and when would you be going home? Just wondering since we’ll be home on Sunday July 7th some time in the evening. — Take Care, Sherry
Rebecca, Doesn’t a Mint Condition sound good right about now?? — Take Care, Sherry
Hi Jeff: Thanks for the info — yes, I do take calcium (with Magnesium) and have been since I was dxed. My mom has been taking Knox Nutri-joint (sp?) and has had good luck with it helping her joint pain so I am going to do a little investigating into that as well. Our family is full of people with arthritis. I, too, try to eat right and not drink coffee (which is, hands down, my favorite drink). I limit myself to a cup a week! And I very rarely rink – I haven’t found a relationship between alcohol and any of my problems — but then, one drink is my limit. Thanks again Rebecca 
– Hide quoted text — Show quoted text -> Rebecca – you may be able to help your joint pain by taking a calcium > supplement. This should contain magnesium which is necesssary to utilize the > calcium. Also a good antioxidant and a multi should help. I get joint pains > when I do things that deplete my body of nutrients such as drink to much coffee > or alcohol or not eating right. If I take my supplements then I rarely get the > pains even though at the moment I am drinking coffee like a fiend. I know I > have to give it up for my own good but I have too much stress right now. Anyway > the supplements help me and I suspect that many people with IBD are not > absorbing all of the nutrients that they need. > Hope this helps. > Jeff > I can sympathize with your frustration Moira — I, too, have UC which seems > to think it is CD. Have you had biopsies taken? Results? I had mine read by > two separate pathologist in two separate states — both came up with the dx > of UC. Still, my UC responds great to Cipro — which is what I am on now > (that and Questran). > I get all the weird joint pain too — > I am sure ultimately, there will be not two, but a whole bunch of > inter-related IBD diseases. I think that is why so many people have such > varying success with different meds/foods/etc. Some do well on Asacol, some > don’t. Some do well on Cipro, some don’t. Some on Imuran, SCD, RMAT, etc. > Rebecca > > I’ve never had my small intesting examined. My "uc" is left sided. > > (of course it is possible to get Crohns in just hte colon). My GI > > keeps saying that people with no IBD sometimes get fistulas and the > > other "complications of Crohns" that I get. And, since I have UC and > > not Crohns it mustn’t be related to my IBD. > > Very frustrating. It’s not related because I "don’t have Crohns". I > > "don’t have Crohns"…why? No one can answer that one. I suppose > > it’s because my disease is left sided and has no skip areas, and to my > > Drs eye it is only in the mucosa. > > Moira > > > You might be right about having CD. That would explain the good > > > response to Cipro, and the fact that you have a fistula (those are > > > very uncommon in UC). > > > What exactly was your diagnosis based on? Has anyone checked your > > > small intestine to see if you have any disease there? If you do, it’s > > > gotta be Crohn’s. And if it is, most gastroenterologists would have no > > > problem giving you Cipro. Best of luck.
Response:
Rebecca, Doesn’t a Mint Condition sound good right about now?? — Take Care, Sherry
Hi Jeff: Thanks for the info — yes, I do take calcium (with Magnesium) and have been since I was dxed. My mom has been taking Knox Nutri-joint (sp?) and has had good luck with it helping her joint pain so I am going to do a little investigating into that as well. Our family is full of people with arthritis. I, too, try to eat right and not drink coffee (which is, hands down, my favorite drink). I limit myself to a cup a week! And I very rarely rink – I haven’t found a relationship between alcohol and any of my problems — but then, one drink is my limit. Thanks again Rebecca
– Hide quoted text — Show quoted text -> Rebecca – you may be able to help your joint pain by taking a calcium > supplement. This should contain magnesium which is necesssary to utilize the > calcium. Also a good antioxidant and a multi should help. I get joint pains > when I do things that deplete my body of nutrients such as drink to much coffee > or alcohol or not eating right. If I take my supplements then I rarely get the > pains even though at the moment I am drinking coffee like a fiend. I know I > have to give it up for my own good but I have too much stress right now. Anyway > the supplements help me and I suspect that many people with IBD are not > absorbing all of the nutrients that they need. > Hope this helps. > Jeff > I can sympathize with your frustration Moira — I, too, have UC which seems > to think it is CD. Have you had biopsies taken? Results? I had mine read by > two separate pathologist in two separate states — both came up with the dx > of UC. Still, my UC responds great to Cipro — which is what I am on now > (that and Questran). > I get all the weird joint pain too — > I am sure ultimately, there will be not two, but a whole bunch of > inter-related IBD diseases. I think that is why so many people have such > varying success with different meds/foods/etc. Some do well on Asacol, some > don’t. Some do well on Cipro, some don’t. Some on Imuran, SCD, RMAT, etc. > Rebecca > > I’ve never had my small intesting examined. My "uc" is left sided. > > (of course it is possible to get Crohns in just hte colon). My GI > > keeps saying that people with no IBD sometimes get fistulas and the > > other "complications of Crohns" that I get. And, since I have UC and > > not Crohns it mustn’t be related to my IBD. > > Very frustrating. It’s not related because I "don’t have Crohns". I > > "don’t have Crohns"…why? No one can answer that one. I suppose > > it’s because my disease is left sided and has no skip areas, and to my > > Drs eye it is only in the mucosa. > > Moira > > > You might be right about having CD. That would explain the good > > > response to Cipro, and the fact that you have a fistula (those are > > > very uncommon in UC). > > > What exactly was your diagnosis based on? Has anyone checked your > > > small intestine to see if you have any disease there? If you do, it’s > > > gotta be Crohn’s. And if it is, most gastroenterologists would have no > > > problem giving you Cipro. Best of luck.
Response:
Hi Jeff: Thanks for the info — yes, I do take calcium (with Magnesium) and have been since I was dxed. My mom has been taking Knox Nutri-joint (sp?) and has had good luck with it helping her joint pain so I am going to do a little investigating into that as well. Our family is full of people with arthritis. I, too, try to eat right and not drink coffee (which is, hands down, my favorite drink). I limit myself to a cup a week! And I very rarely rink – I haven’t found a relationship between alcohol and any of my problems — but then, one drink is my limit. Thanks again Rebecca
– Hide quoted text — Show quoted text -> Rebecca – you may be able to help your joint pain by taking a calcium > supplement. This should contain magnesium which is necesssary to utilize the > calcium. Also a good antioxidant and a multi should help. I get joint pains > when I do things that deplete my body of nutrients such as drink to much coffee > or alcohol or not eating right. If I take my supplements then I rarely get the > pains even though at the moment I am drinking coffee like a fiend. I know I > have to give it up for my own good but I have too much stress right now. Anyway > the supplements help me and I suspect that many people with IBD are not > absorbing all of the nutrients that they need. > Hope this helps. > Jeff > I can sympathize with your frustration Moira — I, too, have UC which seems > to think it is CD. Have you had biopsies taken? Results? I had mine read by > two separate pathologist in two separate states — both came up with the dx > of UC. Still, my UC responds great to Cipro — which is what I am on now > (that and Questran). > I get all the weird joint pain too — > I am sure ultimately, there will be not two, but a whole bunch of > inter-related IBD diseases. I think that is why so many people have such > varying success with different meds/foods/etc. Some do well on Asacol, some > don’t. Some do well on Cipro, some don’t. Some on Imuran, SCD, RMAT, etc. > Rebecca > > I’ve never had my small intesting examined. My "uc" is left sided. > > (of course it is possible to get Crohns in just hte colon). My GI > > keeps saying that people with no IBD sometimes get fistulas and the > > other "complications of Crohns" that I get. And, since I have UC and > > not Crohns it mustn’t be related to my IBD. > > Very frustrating. It’s not related because I "don’t have Crohns". I > > "don’t have Crohns"…why? No one can answer that one. I suppose > > it’s because my disease is left sided and has no skip areas, and to my > > Drs eye it is only in the mucosa. > > Moira > > > You might be right about having CD. That would explain the good > > > response to Cipro, and the fact that you have a fistula (those are > > > very uncommon in UC). > > > What exactly was your diagnosis based on? Has anyone checked your > > > small intestine to see if you have any disease there? If you do, it’s > > > gotta be Crohn’s. And if it is, most gastroenterologists would have no > > > problem giving you Cipro. Best of luck.
Response:
Rebecca – you may be able to help your joint pain by taking a calcium supplement. This should contain magnesium which is necesssary to utilize the calcium. Also a good antioxidant and a multi should help. I get joint pains when I do things that deplete my body of nutrients such as drink to much coffee or alcohol or not eating right. If I take my supplements then I rarely get the pains even though at the moment I am drinking coffee like a fiend. I know I have to give it up for my own good but I have too much stress right now. Anyway the supplements help me and I suspect that many people with IBD are not absorbing all of the nutrients that they need. Hope this helps. Jeff – Hide quoted text — Show quoted text – > I can sympathize with your frustration Moira — I, too, have UC which seems > to think it is CD. Have you had biopsies taken? Results? I had mine read by > two separate pathologist in two separate states — both came up with the dx > of UC. Still, my UC responds great to Cipro — which is what I am on now > (that and Questran). > I get all the weird joint pain too — > I am sure ultimately, there will be not two, but a whole bunch of > inter-related IBD diseases. I think that is why so many people have such > varying success with different meds/foods/etc. Some do well on Asacol, some > don’t. Some do well on Cipro, some don’t. Some on Imuran, SCD, RMAT, etc. > Rebecca > I’ve never had my small intesting examined. My "uc" is left sided. > (of course it is possible to get Crohns in just hte colon). My GI > keeps saying that people with no IBD sometimes get fistulas and the > other "complications of Crohns" that I get. And, since I have UC and > not Crohns it mustn’t be related to my IBD. > Very frustrating. It’s not related because I "don’t have Crohns". I > "don’t have Crohns"…why? No one can answer that one. I suppose > it’s because my disease is left sided and has no skip areas, and to my > Drs eye it is only in the mucosa. > Moira > > You might be right about having CD. That would explain the good > > response to Cipro, and the fact that you have a fistula (those are > > very uncommon in UC). > > What exactly was your diagnosis based on? Has anyone checked your > > small intestine to see if you have any disease there? If you do, it’s > > gotta be Crohn’s. And if it is, most gastroenterologists would have no > > problem giving you Cipro. Best of luck.
Response:
> It isn’t your dr’s eye that is important, it the pathologist and his microscope.
Not necessarily. A lot of the time the biopsies aren’t that definite; for example, 50 percent of biopsies taken from patients with confirmed CD do NOT show granulomas, the supposed hallmark of Crohn’s. Also, the biopsies taken during coloonoscopy aren’t deep enough to show whether the disease involvement is transmural (typical of Crohn’s) or not. That’s usually only determined during resection or other surgery. On the other hand, certain large-scale patterns seen through the scope ARE important, such as the criss-cross pattern of scarring called cobblestoning. That generally means Crohn’s. Skip lesions–a pattern in which diseased areas are separated by healthy areas–are another large-scale pattern that generally means Crohn’s. So a lot of times, the doctor’s eye IS more important than the pathologist’s microscope.
Response:
It isn’t your dr’s eye that is important, it the pathologist and his microscope. – Hide quoted text — Show quoted text – > I’ve never had my small intesting examined. My "uc" is left sided. > (of course it is possible to get Crohns in just hte colon). My GI > keeps saying that people with no IBD sometimes get fistulas and the > other "complications of Crohns" that I get. And, since I have UC and > not Crohns it mustn’t be related to my IBD. > Very frustrating. It’s not related because I "don’t have Crohns". I > "don’t have Crohns"…why? No one can answer that one. I suppose > it’s because my disease is left sided and has no skip areas, and to my > Drs eye it is only in the mucosa. > Moira > You might be right about having CD. That would explain the good > response to Cipro, and the fact that you have a fistula (those are > very uncommon in UC). > What exactly was your diagnosis based on? Has anyone checked your > small intestine to see if you have any disease there? If you do, it’s > gotta be Crohn’s. And if it is, most gastroenterologists would have no > problem giving you Cipro. Best of luck.
Response:
If there is one thing I learned the two years prior to surgery is that tests can come back negative and still be wrong, Dr’s also can be wrong and most of them were. I have now tried to make sure I listen to my body and then make the dr’s listen to what it had to say! All my disgusting tests all the way to emergency surgery said nothing was wrong yet surgery showed a complete blockage and the pathology said CD. So much for trusting test from me. Sorry so cynical. UM MOM Susan
> I’ve never had my small intesting examined. My "uc" is left sided. > (of course it is possible to get Crohns in just hte colon). My GI > keeps saying that people with no IBD sometimes get fistulas and the > other "complications of Crohns" that I get. And, since I have UC and > not Crohns it mustn’t be related to my IBD. > Very frustrating. It’s not related because I "don’t have Crohns". I > "don’t have Crohns"…why? No one can answer that one. I suppose > it’s because my disease is left sided and has no skip areas, and to my > Drs eye it is only in the mucosa. > Moira
– Hide quoted text — Show quoted text -> You might be right about having CD. That would explain the good > response to Cipro, and the fact that you have a fistula (those are > very uncommon in UC). > What exactly was your diagnosis based on? Has anyone checked your > small intestine to see if you have any disease there? If you do, it’s > gotta be Crohn’s. And if it is, most gastroenterologists would have no > problem giving you Cipro. Best of luck.
Response:
I can sympathize with your frustration Moira — I, too, have UC which seems to think it is CD. Have you had biopsies taken? Results? I had mine read by two separate pathologist in two separate states — both came up with the dx of UC. Still, my UC responds great to Cipro — which is what I am on now (that and Questran). I get all the weird joint pain too — I am sure ultimately, there will be not two, but a whole bunch of inter-related IBD diseases. I think that is why so many people have such varying success with different meds/foods/etc. Some do well on Asacol, some don’t. Some do well on Cipro, some don’t. Some on Imuran, SCD, RMAT, etc. Rebecca
> I’ve never had my small intesting examined. My "uc" is left sided. > (of course it is possible to get Crohns in just hte colon). My GI > keeps saying that people with no IBD sometimes get fistulas and the > other "complications of Crohns" that I get. And, since I have UC and > not Crohns it mustn’t be related to my IBD. > Very frustrating. It’s not related because I "don’t have Crohns". I > "don’t have Crohns"…why? No one can answer that one. I suppose > it’s because my disease is left sided and has no skip areas, and to my > Drs eye it is only in the mucosa. > Moira
– Hide quoted text — Show quoted text -> You might be right about having CD. That would explain the good > response to Cipro, and the fact that you have a fistula (those are > very uncommon in UC). > What exactly was your diagnosis based on? Has anyone checked your > small intestine to see if you have any disease there? If you do, it’s > gotta be Crohn’s. And if it is, most gastroenterologists would have no > problem giving you Cipro. Best of luck.
Response:
I’ve never had my small intesting examined. My "uc" is left sided. (of course it is possible to get Crohns in just hte colon). My GI keeps saying that people with no IBD sometimes get fistulas and the other "complications of Crohns" that I get. And, since I have UC and not Crohns it mustn’t be related to my IBD. Very frustrating. It’s not related because I "don’t have Crohns". I "don’t have Crohns"…why? No one can answer that one. I suppose it’s because my disease is left sided and has no skip areas, and to my Drs eye it is only in the mucosa. Moira – Hide quoted text — Show quoted text – > You might be right about having CD. That would explain the good > response to Cipro, and the fact that you have a fistula (those are > very uncommon in UC). > What exactly was your diagnosis based on? Has anyone checked your > small intestine to see if you have any disease there? If you do, it’s > gotta be Crohn’s. And if it is, most gastroenterologists would have no > problem giving you Cipro. Best of luck.
Response:
My fistula responded to the levaquin as well as the sinus infection. My fistula was previously draining puss and after 1 week on levaquin the pus and pain/pressure went away from the fistula. My surgeon as much as said "the relief you are experiencing is a temporary thing brought on by the antibiotics". As if that was a bad thing. He then said that the fistula had reduced to a small spot that "didn’t go anywhere". It sounded like real healing to me. I’m really not a stupid person. I wish the medical community would actually ADDRESS my questions rather than give illogical answers in hopes of making me give up asking them. No one has given me a logical reason why antibiotics won’t help me. If they could do that, I’d drop it. Moira
Response:
> I’m not 100% convinced > that it’s not CD).
You might be right about having CD. That would explain the good response to Cipro, and the fact that you have a fistula (those are very uncommon in UC). What exactly was your diagnosis based on? Has anyone checked your small intestine to see if you have any disease there? If you do, it’s gotta be Crohn’s. And if it is, most gastroenterologists would have no problem giving you Cipro. Best of luck.
Response:
> ….Anyhow, I’ve got an infected fistula. My Drs won’t > give me cipro for it because they say antibiotics only work for CD.
Moira, My Dr prescribed Flagyl for maintenance of my fistulas so they wouldn’t become infected. (Crohn’s Disease with anal fistulas) What is important here is that Flagyl is an antibiotic which is specific for ANAEROBIC bacteria. Cipro is specific for *certain* AEROBIC bacteria. Apparently the fistulas become infected with anaerobic bacteria. Are you saying that your fistulas are responding to the Cipro? Or is it your sinus infection only that is responding? Where are your fistulas? Regards Tarasco – Hide quoted text — Show quoted text -> I’ve been on cipro for 9 days for a sinus infection and I’m feeling > like a brand new woman. Wonderful. My pain is gone. My energy is > back. > I take my last cipro tonight. No one will give me more. I’m sure by > Monday I"ll be back to fever and pain and puss from my fistula. > I’m so mad I could spit. So, where do you find Drs that will give you > cipro for UC? I’m in Ottawa, Canada. > Moira
Response:
It took me almost a year of Cipro therapy to finally feel well enough to work out 3 days a week!! And even then it really wipes me out (and I’m not doing anything too strenuous) Jeff and Dorothy are totally right! Rebecca Some doctors still consider the Cipro treatment to be "cutting edge", so keep calling GI docs until you find one that is keeping up with his/her studies. Maybe the web has some material that you could provide. If a doctor isn’t listening to you that you are feeling so much better as a direct result of the cipro, you really need to find another doc anyway. As Jeff said, it helps everything to have a healthy lifestyle, but it is nearly impossible to keep to a balanced diet or an exercise program when you feel nauseated, have d and can barely get out of bed. Hang is there. Hopefully with perseverence, you will find a doc who will listen and is smart enough to deal with your illness. Dotsie
I had to take this opportunity to vent my frustration. I’ve had UCfor 25 years. (at least my Gi thinks it’s UC…I’m not 100% convincedthat it’s not CD). Anyhow, I’ve got an infected fistula. My Drs won’tgive me cipro for it because they say antibiotics only work for CD.I’ve been on cipro for 9 days for a sinus infection and I’m feelinglike a brand new woman. Wonderful. My pain is gone. My energy isback.I take my last cipro tonight. No one will give me more. I’m sure byMonday I"ll be back to fever and pain and puss from my fistula.I’m so mad I could spit. So, where do you find Drs that will give youcipro for UC? I’m in Ottawa, Canada.Moira
Response:
I have been using Cipro for several years and it is one of the things that keeps my CD uder any semblance of control. It is quite expensive, in the region of $2CDN which means that a years supply is worth almost $1,500CDN I am a Canuck too, Edmonton, Alberta Godd luck getting the good stuff. – Paul – Hide quoted text — Show quoted text – > Hi, > The GI just gave me this as one of my last alternatives > before surgery. Anyway had success with this anti-biotic for ulcerative > colitis. I’ve never tried it before in 10 years of having this illness, so I > think it might be worth it. > Thanks > Faisal
Response:
You’re right, I didn’t think about that. Noella – Hide quoted text — Show quoted text -> I’d be a little bit wary of this. Whatever they are selling may not be the real > thing. It will be very difficult to tell until they either work or don’t work. > And it takes at least a week before you notice any change. Probably about 3-4 > weeks before a significant change so you could get worse during this time if the > drugs you get are not real. > I think it would be better to just get a new doctor. > Regards, > Jeff > Hi Moira, > Somebody posted about antibiotics being otc in Mexico. > If I were in your situation, I’ll first try to get it from the GI, or change > doc if he doesn’t want to prescribe it. Finally if nothing else worked I > would go for the otc mexican antibio. You can have a lot of info on it from > people taking in this ng. I know this idea might sound dangerous, but in my > opinion it is far less dangerous than living with an infected fistula. > Surgery might be an option, but it doesn’t prevent another fistula whereas > cipro probably does. > This just my opinion and what I would do in your situation. > I hope you’ll find an understanding doc and that you can have your life > back. > Take care, > Noella > > I had to take this opportunity to vent my frustration. I’ve had UC > > for 25 years. (at least my Gi thinks it’s UC…I’m not 100% convinced > > that it’s not CD). Anyhow, I’ve got an infected fistula. My Drs won’t > > give me cipro for it because they say antibiotics only work for CD. > > I’ve been on cipro for 9 days for a sinus infection and I’m feeling > > like a brand new woman. Wonderful. My pain is gone. My energy is > > back. > > I take my last cipro tonight. No one will give me more. I’m sure by > > Monday I"ll be back to fever and pain and puss from my fistula. > > I’m so mad I could spit. So, where do you find Drs that will give you > > cipro for UC? I’m in Ottawa, Canada. > > Moira
Response:
Some doctors still consider the Cipro treatment to be "cutting edge", so keep calling GI docs until you find one that is keeping up with his/her studies. Maybe the web has some material that you could provide. If a doctor isn’t listening to you that you are feeling so much better as a direct result of the cipro, you really need to find another doc anyway. As Jeff said, it helps everything to have a healthy lifestyle, but it is nearly impossible to keep to a balanced diet or an exercise program when you feel nauseated, have d and can barely get out of bed. Hang is there. Hopefully with perseverence, you will find a doc who will listen and is smart enough to deal with your illness. Dotsie – Hide quoted text — Show quoted text – >I would explain to your doc that your UC (or CD) is doing better since >taking the Cipro. And as Rebecca said, print out these emails and show >them to him. Cipro is used by many doctors to treat UC and probably CD as >well. I’ve been taking it for almost 2 years and it has made all the >difference. I do a lot of other things too and I strongly recommend >developing a healthy lifestyle as well. >If you doctor still refuses to prescribe the Cipro then I would get a new >one. >Regards, >Jeff >I had to take this opportunity to vent my frustration. I’ve had UC >for 25 years. (at least my Gi thinks it’s UC…I’m not 100% convinced >that it’s not CD). Anyhow, I’ve got an infected fistula. My Drs won’t >give me cipro for it because they say antibiotics only work for CD. >I’ve been on cipro for 9 days for a sinus infection and I’m feeling >like a brand new woman. Wonderful. My pain is gone. My energy is >back. >I take my last cipro tonight. No one will give me more. I’m sure by >Monday I"ll be back to fever and pain and puss from my fistula. >I’m so mad I could spit. So, where do you find Drs that will give you >cipro for UC? I’m in Ottawa, Canada. >Moira
Response:
I would explain to your doc that your UC (or CD) is doing better since taking the Cipro. And as Rebecca said, print out these emails and show them to him. Cipro is used by many doctors to treat UC and probably CD as well. I’ve been taking it for almost 2 years and it has made all the difference. I do a lot of other things too and I strongly recommend developing a healthy lifestyle as well. If you doctor still refuses to prescribe the Cipro then I would get a new one. Regards, Jeff – Hide quoted text — Show quoted text – > I had to take this opportunity to vent my frustration. I’ve had UC > for 25 years. (at least my Gi thinks it’s UC…I’m not 100% convinced > that it’s not CD). Anyhow, I’ve got an infected fistula. My Drs won’t > give me cipro for it because they say antibiotics only work for CD. > I’ve been on cipro for 9 days for a sinus infection and I’m feeling > like a brand new woman. Wonderful. My pain is gone. My energy is > back. > I take my last cipro tonight. No one will give me more. I’m sure by > Monday I"ll be back to fever and pain and puss from my fistula. > I’m so mad I could spit. So, where do you find Drs that will give you > cipro for UC? I’m in Ottawa, Canada. > Moira
Response:
I’d be a little bit wary of this. Whatever they are selling may not be the real thing. It will be very difficult to tell until they either work or don’t work. And it takes at least a week before you notice any change. Probably about 3-4 weeks before a significant change so you could get worse during this time if the drugs you get are not real. I think it would be better to just get a new doctor. Regards, Jeff – Hide quoted text — Show quoted text – > Hi Moira, > Somebody posted about antibiotics being otc in Mexico. > If I were in your situation, I’ll first try to get it from the GI, or change > doc if he doesn’t want to prescribe it. Finally if nothing else worked I > would go for the otc mexican antibio. You can have a lot of info on it from > people taking in this ng. I know this idea might sound dangerous, but in my > opinion it is far less dangerous than living with an infected fistula. > Surgery might be an option, but it doesn’t prevent another fistula whereas > cipro probably does. > This just my opinion and what I would do in your situation. > I hope you’ll find an understanding doc and that you can have your life > back. > Take care, > Noella > I had to take this opportunity to vent my frustration. I’ve had UC > for 25 years. (at least my Gi thinks it’s UC…I’m not 100% convinced > that it’s not CD). Anyhow, I’ve got an infected fistula. My Drs won’t > give me cipro for it because they say antibiotics only work for CD. > I’ve been on cipro for 9 days for a sinus infection and I’m feeling > like a brand new woman. Wonderful. My pain is gone. My energy is > back. > I take my last cipro tonight. No one will give me more. I’m sure by > Monday I"ll be back to fever and pain and puss from my fistula. > I’m so mad I could spit. So, where do you find Drs that will give you > cipro for UC? I’m in Ottawa, Canada. > Moira
Response:
I’ve been using it as well — seems to work for me, too. Rebecca
– Hide quoted text — Show quoted text -> Hi, > The GI just gave me this as one of my last alternatives > before surgery. Anyway had success with this anti-biotic for ulcerative > colitis. I’ve never tried it before in 10 years of having this illness, so I > think it might be worth it. > Thanks > Faisal
Response:
Moira — can you print out some of our testimonials??? Is there anything on the CCFA website that talks about UC and Cipro that you can show your doc?? I’d be furious if I were you. The combination of Questran and Cipro has made me feel so good these last few months — Best of luck to you – no one should have to suffer if there is something that works. Rebecca
– Hide quoted text — Show quoted text -> I had to take this opportunity to vent my frustration. I’ve had UC > for 25 years. (at least my Gi thinks it’s UC…I’m not 100% convinced > that it’s not CD). Anyhow, I’ve got an infected fistula. My Drs won’t > give me cipro for it because they say antibiotics only work for CD. > I’ve been on cipro for 9 days for a sinus infection and I’m feeling > like a brand new woman. Wonderful. My pain is gone. My energy is > back. > I take my last cipro tonight. No one will give me more. I’m sure by > Monday I"ll be back to fever and pain and puss from my fistula. > I’m so mad I could spit. So, where do you find Drs that will give you > cipro for UC? I’m in Ottawa, Canada. > Moira
Response:
Thanks for this info, Jeff. I never knew about these interactions. I’ve been taking Cipro for 11 months now and it definitely has made a difference. Within 10 days of starting it, I felt like an amazing difference. I tried to stop it on my own twice and immediately started getting worse. Now I just try not to think about resistance ,etc. I’m with you. Cipro rules! Dotsie – Hide quoted text — Show quoted text – >Cipro has worked wonders for me. Actually I’ve been taking it now for well over >a year. I also take one good quality probiotic a day. You need to read the whole >label for the Cipro. There are many instructions on what vitamins and minerals >you cannot take within 2 hours before or 6 hours after taking it. Not that there >are bad effects – mostly that they will neutralize the Cipro. Don’t take any >diary products 2 hr. before or 6 hours after, same with zinc, magesium, calcium, >iron and maybe a few others. I take a lot of vitamins so I have a whole routine >of when I can take them. It’s not so bad now that I’ve been doing this for over >a year. Also I feel great most of the time now so compared to when I was totally >miserable – well you get the picture. >Cipro rules. >Regards, >Jeff >p.s. – there are some potential serious side effects of taking antibiotics long >term and you should learn about them for your doctor and other sources. Also >some people can have negative reactions to different antibiotics as well. Lastly >Cipro is designed to kill certain types of strains of bacteria and if your >disease is a result of a different strain then you may not get the benefits that >some people (like me) have gotten. It may be possible that a different >antibiotic would be better for you if Cipro does not work. Anyway just thought >I’d throw that out there. Hope it works for you as it did for me. >Hi, >The GI just gave me this as one of my last alternatives > before surgery. Anyway had success with this anti-biotic for ulcerative >colitis. I’ve never tried it before in 10 years of having this illness, so I >think it might be worth it. >Thanks >Faisal
Response:
I had to take this opportunity to vent my frustration. I’ve had UC for 25 years. (at least my Gi thinks it’s UC…I’m not 100% convinced that it’s not CD). Anyhow, I’ve got an infected fistula. My Drs won’t give me cipro for it because they say antibiotics only work for CD. I’ve been on cipro for 9 days for a sinus infection and I’m feeling like a brand new woman. Wonderful. My pain is gone. My energy is back. I take my last cipro tonight. No one will give me more. I’m sure by Monday I"ll be back to fever and pain and puss from my fistula. I’m so mad I could spit. So, where do you find Drs that will give you cipro for UC? I’m in Ottawa, Canada. Moira
Response:
Hi Moira, Somebody posted about antibiotics being otc in Mexico. If I were in your situation, I’ll first try to get it from the GI, or change doc if he doesn’t want to prescribe it. Finally if nothing else worked I would go for the otc mexican antibio. You can have a lot of info on it from people taking in this ng. I know this idea might sound dangerous, but in my opinion it is far less dangerous than living with an infected fistula. Surgery might be an option, but it doesn’t prevent another fistula whereas cipro probably does. This just my opinion and what I would do in your situation. I hope you’ll find an understanding doc and that you can have your life back. Take care, Noella – Hide quoted text — Show quoted text -> I had to take this opportunity to vent my frustration. I’ve had UC > for 25 years. (at least my Gi thinks it’s UC…I’m not 100% convinced > that it’s not CD). Anyhow, I’ve got an infected fistula. My Drs won’t > give me cipro for it because they say antibiotics only work for CD. > I’ve been on cipro for 9 days for a sinus infection and I’m feeling > like a brand new woman. Wonderful. My pain is gone. My energy is > back. > I take my last cipro tonight. No one will give me more. I’m sure by > Monday I"ll be back to fever and pain and puss from my fistula. > I’m so mad I could spit. So, where do you find Drs that will give you > cipro for UC? I’m in Ottawa, Canada. > Moira
Response:
Hi, The GI just gave me this as one of my last alternatives before surgery. Anyway had success with this anti-biotic for ulcerative colitis. I’ve never tried it before in 10 years of having this illness, so I think it might be worth it. Thanks Faisal
Response:
Cipro has worked wonders for me. Actually I’ve been taking it now for well over a year. I also take one good quality probiotic a day. You need to read the whole label for the Cipro. There are many instructions on what vitamins and minerals you cannot take within 2 hours before or 6 hours after taking it. Not that there are bad effects – mostly that they will neutralize the Cipro. Don’t take any diary products 2 hr. before or 6 hours after, same with zinc, magesium, calcium, iron and maybe a few others. I take a lot of vitamins so I have a whole routine of when I can take them. It’s not so bad now that I’ve been doing this for over a year. Also I feel great most of the time now so compared to when I was totally miserable – well you get the picture. Cipro rules. Regards, Jeff p.s. – there are some potential serious side effects of taking antibiotics long term and you should learn about them for your doctor and other sources. Also some people can have negative reactions to different antibiotics as well. Lastly Cipro is designed to kill certain types of strains of bacteria and if your disease is a result of a different strain then you may not get the benefits that some people (like me) have gotten. It may be possible that a different antibiotic would be better for you if Cipro does not work. Anyway just thought I’d throw that out there. Hope it works for you as it did for me. – Hide quoted text — Show quoted text – > Hi, > The GI just gave me this as one of my last alternatives > before surgery. Anyway had success with this anti-biotic for ulcerative > colitis. I’ve never tried it before in 10 years of having this illness, so I > think it might be worth it. > Thanks > Faisal
Response:
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