Looking for explanations
Question:
>LOL… I’d say it is probably a good plan for all. >We should declare a "relaxation night" — one in which each of us does >something hat relaxes us — read a book, watch a movie, soak in the >tub, whatever nice, pamper-y thing makes us feel good.
I know I >could sure use it and I bet everyone else could too.
Oh, yes. My pampering night is Wednesday when I have my massage. It helps to control the muscle spasms that I get from the HEDS. (The muscles aren’t designed to support the body, so the muscle spasms are severe.) I found out how beneficial the massages were when she was away for four weeks. I really suffered. Chocolate is off the list for me at the moment. My weight has gone up. Not sure by how much, as I don’t want to know, but enough that clothes that were a tad loose are now tight. I have a pile of books ready for when I am recovering from my surgery. — Andrea Fuller Winchester, England HEDS (VEDS overlay), FMS, OA, IBS, lumbar scoliosis, tinnitus, some hearing loss, stomach problems, chronic depression, multiple allergies, asthma…. Please excuse any typos or odd phrases. I am talking to the Dragon.
Response:
Can we try that even if we don’t have an axe to grind? <g> Mike — "Do you really need that cane?" "No… I just carry it to whup fools upside the head!" Delirious Royal Alchemist to the Realm of W.H.I.N.E. (90 days / same as cash!)
– Hide quoted text — Show quoted text – > So go > take a Xanax, smoke a doobie, have a scotch on the rocks, sit in a > bubble bath, whatever you do to relax a bit, and chill out a little, > ok?
Response:
LOL… I’d say it is probably a good plan for all. We should declare a "relaxation night" — one in which each of us does something hat relaxes us — read a book, watch a movie, soak in the tub, whatever nice, pamper-y thing makes us feel good.
I know I could sure use it and I bet everyone else could too. Aim >Can we try that even if we don’t have an axe to grind? <g> > Mike
To reply via email, make sure to remove the DEATH-TO-SPAMMERS from my address! It should read: aimgrrrl at mindspring dot com
Response:
looking at it now, I guess that *was* kinda funny. I really honestly wasn’t being sarcastic, though. A bit overly blunt, perhaps, but when am I not blunt??? lol Aim who thinks laughing at herself is a great pastime To reply via email, make sure to remove the DEATH-TO-SPAMMERS from my address! It should read: aimgrrrl at mindspring dot com
Response:
> >> Maybe it’s because there was a recent full moon and I >> accidentally drank the distilled water for my iron thinking it was spring >> water. Yeah. Oh, and I did get out of the wrong side of the bed, and forgot >> my blood pressure medicine last night. That might have done it. >Could it be so simple?
> <snipped URLs> >you would think that it was a ‘bad’ thing?
Who loves ya. Tom > Tom, did you READ her email???? > Or did you just see the word ‘iron’ and go off?
I saw the word.. iron.. and she is lucky I search with the word iron .. or she wouldn’t have caught me..
I thought maybe I should have placed those two articles in my iron and arthritis thread BUT.. this thread is in reference to.. "oh why , oh why.. what did I ever do??.." or.. I wonder what causes these flares?
I have offered what I consider a ‘good’ explanation.. with citations.. you give me ANYONE who comes close to what causes arthritis.. As to ‘hitting people over the head’.. you must have noticed someone mentioned they could not find reference to rheumatoid arthritis in any of my posted links? Why did I place them if there wasn’t something referring to rheumatoid arthritis? They DID refer to RA and they even said it in the citations. Some of my brothers and sisters out there are a little ‘rusty’
when it comes to reading abstracts and thusly I may seem to post ‘more’ than usual but it is only to give a more ‘lucid’ .. easier to understand .. ‘explanation’.. for this disease process..? Who loves ya. Tom > Tom, I think you have some good information to share, but like cayce, > if you bash people over the head with it over and over and over, they > just get annoyed and stop listening to anything you have to say. So go > take a Xanax, smoke a doobie, have a scotch on the rocks, sit in a > bubble bath, whatever you do to relax a bit, and chill out a little, > ok? > Aim > To reply via email, make sure to remove the DEATH-TO-SPAMMERS from my address! > It should read: aimgrrrl at mindspring dot com
– Jesus was a Vegetarian! http://www.nucleus.com/watchman Iron In Disease http://www.waste.org/~lanshark/vegan/iron.html Iron In Disease http://www.cdc.gov/ncidod/eid/vol5no3/weinberg.htm
Response:
– Hide quoted text — Show quoted text -> Tom, did you READ her email???? > Or did you just see the word ‘iron’ and go off? > She said she "accidentally drank the distilled water for her iron" > Iron. As in the Appliance. You put distilled water in it to steam > clothes while pressing. Has NOTHING to do with what you’re talking > about. > Tom, I think you have some good information to share, but like cayce, > if you bash people over the head with it over and over and over, they > just get annoyed and stop listening to anything you have to say. So go > take a Xanax, smoke a doobie, have a scotch on the rocks, sit in a > bubble bath, whatever you do to relax a bit, and chill out a little, > ok? > Aim
— Di "When one tugs at a single thing in nature, he finds it attached to the rest of the world" John Muir Diane_Abell at msn dot com http://loveyourmother.homestead.com
Response:
>> Maybe it’s because there was a recent full moon and I > accidentally drank the distilled water for my iron thinking it was spring > water. Yeah. Oh, and I did get out of the wrong side of the bed, and forgot > my blood pressure medicine last night. That might have done it. >Could it be so simple?
<snipped URLs> >you would think that it was a ‘bad’ thing?
Who loves ya. Tom
Tom, did you READ her email???? Or did you just see the word ‘iron’ and go off? She said she "accidentally drank the distilled water for her iron" Iron. As in the Appliance. You put distilled water in it to steam clothes while pressing. Has NOTHING to do with what you’re talking about. Tom, I think you have some good information to share, but like cayce, if you bash people over the head with it over and over and over, they just get annoyed and stop listening to anything you have to say. So go take a Xanax, smoke a doobie, have a scotch on the rocks, sit in a bubble bath, whatever you do to relax a bit, and chill out a little, ok? Aim To reply via email, make sure to remove the DEATH-TO-SPAMMERS from my address! It should read: aimgrrrl at mindspring dot com
Response:
– Hide quoted text — Show quoted text -> The other day I was visiting an 82 year old woman w/REALLY bad flare of > psoriasis and exacerbation of psoriatic arthritis. We’re doing a > triamcinolone and syran body wrap and got to talking about "why" and "how" > this exacerbation happened. It suddenly dawned on me that I ALWAYS look for > explanations for flares. Why is that? > No matter how many times they have occurred, no matter how many times I tell > myself there isn’t an explanation – I still look for one. Was it something I > ate, something I did – or didn’t do, how I slept (love it when I say to > myself – "I must have slept funny" – I’m not even sure what that means yet > sometimes it sounds plausible), is it related to the weather – the seasons, > stress, too much exercise or lack there of?? I mean why can’t I accept that > there just isn’t any reason? It just happens. > There have been times when it seems that I’d rather believe some off the > wall reason than accept that there isn’t ANY reason. Is it because I’m > looking for someone/something to blame? Or maybe if I could figure out the > cause I could avoid that precipitating factor the next time? You know, the > "I’ll never do that again" routine. Or maybe I just can’t accept the fact > that this is something I’m not in control of? Now that’s scary. > Hmmm, that must be it. I can’t accept the fact that I’m not in charge. I’m > at the whim of chance and fate. > Naw, don’t buy it. Maybe it’s because there was a recent full moon and I > accidentally drank the distilled water for my iron thinking it was spring > water. Yeah. Oh, and I did get out of the wrong side of the bed, and forgot > my blood pressure medicine last night. That might have done it. > Toni
Could it be so simple?
http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query_old?uid=10070275&… b http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query_old?uid=1529798&f… If iron seems to do the OPPOSITE of what EXPENSIVE arthritis treatments do.. you would think that it was a ‘bad’ thing?
Who loves ya. Tom — Jesus was a Vegetarian! http://www.nucleus.com/watchman Iron In Disease http://www.waste.org/~lanshark/vegan/iron.html Iron In Disease http://www.cdc.gov/ncidod/eid/vol5no3/weinberg.htm
Response:
> >These articles speak to the ‘explanation’ I have presented. The first two >articles speak to the fact the iron excess in the body depletes the body of >antioxidants INCLUDING ‘retinol’.. vitamin D.. the ’skin’ vitamin. > Retinol is NOT vitamin D, it’s Vitamin A. > And those articles prove NOTHING about the effects all of the above > has on arthritis. If you’re gonna cite medical articles and studies, > it would probably be a good idea to get yourself a medical dictionary, > cuz it is apparent you didn’t understand them. > A.
The REASON I screwed up there is because I had vitamin D in my mind. I had just posted to a list about a patent which is being processed in which they are patenting the use of vitamin D in Aids. I questioned the list as to whether these people were patenting the actual ‘use’ of vitamin D or the ‘method of administration’. It is an ‘ethics’ question.. as to whether one should fight the patenting of natural substances or should one start to patent them oneself.. like it seems the medical profession is doing.. While you are here.. this url may be of interest. You mentioned you believe doctors are fully capable of discerning iron excess? Well the iron researchers are of the belief the MARKER which doctors use to assess ’safe and sufficient’ iron stores are set TOO HIGH. They believe the ferritin should be taken to zero to ensure the iron … excess iron .. has been removed. The theory being the body will garner iron from those ‘recesses’ to build red blood cells. As a matter of fact I posted an article to an MS list.. they have JUST found amounts of iron in the brain of MS patients. The man wrote and thanked me ‘big time’ for posting the article because his MRI had shown these lesions in his brain.. but since being treated for iron excess these lesions have shrunk. Sickle cell anemia patients have been found to go from 8 ‘crisis’ to one.. by simply keeping their hemoglobin DOWN to 8.2 – 9 instead of transfusing them to ‘try’ to get them to ten. Now with what the researchers are saying as to the marker being set too high.. NOW .. look at this article and tell me iron can’t be involved? http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query_old?uid=10985917&… b Who loves ya. Tom — Jesus was a Vegetarian! http://www.nucleus.com/watchman Iron In Disease http://www.waste.org/~lanshark/vegan/iron.html Iron In Disease http://www.cdc.gov/ncidod/eid/vol5no3/weinberg.htm
Response:
– Hide quoted text — Show quoted text ->Retinol is NOT vitamin D, it’s Vitamin A. >And those articles prove NOTHING about the effects all of the above >has on arthritis. If you’re gonna cite medical articles and studies, >it would probably be a good idea to get yourself a medical dictionary, >cuz it is apparent you didn’t understand them. > To add to my comment, > Granted, there is such a disease as Hemochromatosis. But it is *NOT* > the cause of RA. Yes it can cause some joint pain. That is very > different from a disease that *destroys* your joints. And the vast > majority of people who have one of the various types of Arthritis, if > they are seeing a doctor, are getting regular blood workups, including > liver function, platelet and other testing. Hemochromatosis is > *hardly* a likely factor.
If you think most doctors are capable of even doing a proper iron workup.. you are mistaken. Dollars to donuts if you mention the ‘iron witholding mechanism’ to him he will say.. "What?"
If you type in iron witholding mechanism in a search of my Weinberg sig.. it explains HOW one can ‘appear’ to be iron deficient but actually be overloaded. As the study shows though.. free radicals.. oxidation .. rust .. IS found in the joints of those with this problem. As to the bone loss.. I can forward an article which speaks to the fact iron is KNOWN to cause bone loss.. As to iron being ‘hardly’ a factor.. what about the people with colitis who are now finding iron is involved in this disease? Those doctors have been treating these people for ANEMIA for a long time.. Who loves ya. Tom > To reply via email, make sure to remove the DEATH-TO-SPAMMERS from my address! > It should read: aimgrrrl at mindspring dot com
– Jesus was a Vegetarian! http://www.nucleus.com/watchman Iron In Disease http://www.waste.org/~lanshark/vegan/iron.html Iron In Disease http://www.cdc.gov/ncidod/eid/vol5no3/weinberg.htm
Response:
>These articles speak to the ‘explanation’ I have presented. The first two >articles speak to the fact the iron excess in the body depletes the body of >antioxidants INCLUDING ‘retinol’.. vitamin D.. the ’skin’ vitamin.
Retinol is NOT vitamin D, it’s Vitamin A. And those articles prove NOTHING about the effects all of the above has on arthritis. If you’re gonna cite medical articles and studies, it would probably be a good idea to get yourself a medical dictionary, cuz it is apparent you didn’t understand them. A. To reply via email, make sure to remove the DEATH-TO-SPAMMERS from my address! It should read: aimgrrrl at mindspring dot com
Response:
>Retinol is NOT vitamin D, it’s Vitamin A. >And those articles prove NOTHING about the effects all of the above >has on arthritis. If you’re gonna cite medical articles and studies, >it would probably be a good idea to get yourself a medical dictionary, >cuz it is apparent you didn’t understand them.
To add to my comment, Granted, there is such a disease as Hemochromatosis. But it is *NOT* the cause of RA. Yes it can cause some joint pain. That is very different from a disease that *destroys* your joints. And the vast majority of people who have one of the various types of Arthritis, if they are seeing a doctor, are getting regular blood workups, including liver function, platelet and other testing. Hemochromatosis is *hardly* a likely factor. A. To reply via email, make sure to remove the DEATH-TO-SPAMMERS from my address! It should read: aimgrrrl at mindspring dot com
Response:
– Hide quoted text — Show quoted text -> Retinol is NOT vitamin D, it’s Vitamin A. > And those articles prove NOTHING about the effects all of the above > has on arthritis. If you’re gonna cite medical articles and studies, > it would probably be a good idea to get yourself a medical dictionary, > cuz it is apparent you didn’t understand them. > To add to my comment, > Granted, there is such a disease as Hemochromatosis. But it is *NOT* > the cause of RA. Yes it can cause some joint pain. That is very > different from a disease that *destroys* your joints. And the vast > majority of people who have one of the various types of Arthritis, if > they are seeing a doctor, are getting regular blood workups, including > liver function, platelet and other testing. Hemochromatosis is > *hardly* a likely factor. > A. > To reply via email, make sure to remove the DEATH-TO-SPAMMERS from my address! > It should read: aimgrrrl at mindspring dot com
You get ‘em girl. Thanks for info, it’s hard to pull anything that might be truthful or helpful out of such ramblings as Tom has posted… -kk
Response:
Dear Watchman, You shot yourself in the foot. Retinol is vitamin A and isn’t, as you unequivocally state "vitamin D.. the ’skin’ vitamin." http://micro.magnet.fsu.edu/vitamins/pages/retinol.html The first nutritional deficiency disease to be identified and studied was night blindness. Ancient cultures recognized this and utilized cooked liver as both a topical and systemic cure for this malady. Retinol was first identified in 1920 and, being the first vitamin, was named vitamin A under the alphabetical nomenclature system. Its high concentration in the liver is due to the fat-soluble nature of this polyene biochemical, although because of the storage mechanism, excessive doses of vitamin A can be very toxic. The most critical biochemical to vision is retinal, an aldehyde that can be synthesized in vivo from retinol by NAD oxidation. Retinal exists in several isomeric states that are modulated by photon irridation and are very important in the conversion of light waves into vision. The most common source of vitamin A is liver, but many plants contain beta-carotene, which is metabolically converted to vitamin A. Symptoms associated with a deficiency of vitamin A are night blindness, changes in the eyes, poor bone growth, weak tooth enamel, slow growth, and dry skin. Cindy Donnell >These articles speak to the ‘explanation’ I have presented. The first two >articles speak to the fact the iron excess in the body depletes the body of >antioxidants INCLUDING ‘retinol’.. vitamin D.. the ’skin’ vitamin.
snip Tom —
Response:
> Dear Watchman, > You shot yourself in the foot. Retinol is vitamin A and isn’t, as you > unequivocally state "vitamin D.. the ’skin’ vitamin."
Yer right.. it is vitamin A.. BUT .. it is still the ‘retinol’ we are talking about. As shown in the studies retinol of one of many antioxidants which ae depleted in those with iron excess. Iron oxidizes destroying antioxidants.. and retinol IS used to treat skin problems.. Who loves ya. Tom – Hide quoted text — Show quoted text -> night blindness. Ancient cultures recognized this and utilized cooked liver > as both a topical and systemic cure for this malady. Retinol was first > identified in 1920 and, being the first vitamin, was named vitamin A under > the alphabetical nomenclature system. Its high concentration in the liver is > due to the fat-soluble nature of this polyene biochemical, although because > of the storage mechanism, excessive doses of vitamin A can be very toxic. > The most critical biochemical to vision is retinal, an aldehyde that can be > synthesized in vivo from retinol by NAD oxidation. Retinal exists in several > isomeric states that are modulated by photon irridation and are very > important in the conversion of light waves into vision. The most common > source of vitamin A is liver, but many plants contain beta-carotene, which > is metabolically converted to vitamin A. Symptoms associated with a > deficiency of vitamin A are night blindness, changes in the eyes, poor bone > growth, weak tooth enamel, slow growth, and dry skin. > Cindy Donnell >>These articles speak to the ‘explanation’ I have presented. The first two >articles speak to the fact the iron excess in the body depletes the body of >antioxidants INCLUDING ‘retinol’.. vitamin D.. the ’skin’ vitamin. > snip > Tom —
– Jesus was a Vegetarian! http://www.nucleus.com/watchman Iron In Disease http://www.waste.org/~lanshark/vegan/iron.html Iron In Disease http://www.cdc.gov/ncidod/eid/vol5no3/weinberg.htm
Response:
– Hide quoted text — Show quoted text -> The other day I was visiting an 82 year old woman w/REALLY bad flare of > psoriasis and exacerbation of psoriatic arthritis. We’re doing a > triamcinolone and syran body wrap and got to talking about "why" and "how" > this exacerbation happened. It suddenly dawned on me that I ALWAYS look for > explanations for flares. Why is that? > No matter how many times they have occurred, no matter how many times I tell > myself there isn’t an explanation – I still look for one. Was it something I > ate, something I did – or didn’t do, how I slept (love it when I say to > myself – "I must have slept funny" – I’m not even sure what that means yet > sometimes it sounds plausible), is it related to the weather – the seasons, > stress, too much exercise or lack there of?? I mean why can’t I accept that > there just isn’t any reason? It just happens. > There have been times when it seems that I’d rather believe some off the > wall reason than accept that there isn’t ANY reason. Is it because I’m > looking for someone/something to blame? Or maybe if I could figure out the > cause I could avoid that precipitating factor the next time? You know, the > "I’ll never do that again" routine. Or maybe I just can’t accept the fact > that this is something I’m not in control of? Now that’s scary. > Hmmm, that must be it. I can’t accept the fact that I’m not in charge. I’m > at the whim of chance and fate. > Naw, don’t buy it. Maybe it’s because there was a recent full moon and I > accidentally drank the distilled water for my iron thinking it was spring > water. Yeah. Oh, and I did get out of the wrong side of the bed, and forgot > my blood pressure medicine last night. That might have done it.
This article speaks to the finding of a ‘limit’ to the amount of iron the body can control.. It seems the body controls iron partially by the ph.. and there are MANY things which cause a more acidic condition in the body. Stress.. simple stress causes the body to become more acidic. When this happens the ph becomes lower in the body and causes the body to release its cargo.. iron. If I were you I would have a look into this finding of ‘nontransferrin bound’ iron. In order to induce a vitamin E deficiency in a lab animal researchers simply overload it with iron which destroys the tocopherol. Vitamin E is an ‘anti’oxidant and iron is a PREMIERE oxidizer/rust. http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query_old?uid=10548925&… b Who loves ya. Tom — Jesus was a Vegetarian! http://www.nucleus.com/watchman Iron In Disease http://www.waste.org/~lanshark/vegan/iron.html Iron In Disease http://www.cdc.gov/ncidod/eid/vol5no3/weinberg.htm
Response:
– Hide quoted text — Show quoted text ->Retinol is NOT vitamin D, it’s Vitamin A. >And those articles prove NOTHING about the effects all of the above >has on arthritis. If you’re gonna cite medical articles and studies, >it would probably be a good idea to get yourself a medical dictionary, >cuz it is apparent you didn’t understand them. > To add to my comment, > Granted, there is such a disease as Hemochromatosis. But it is *NOT* > the cause of RA. Yes it can cause some joint pain. That is very > different from a disease that *destroys* your joints. And the vast > majority of people who have one of the various types of Arthritis, if > they are seeing a doctor, are getting regular blood workups, including > liver function, platelet and other testing. Hemochromatosis is > *hardly* a likely factor.
http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query_old?uid=10095454&… http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query_old?uid=1984909&f… http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query_old?uid=3768055&f… These articles speak to iron in the joints and the DESTRUCTION of said joints.. Who loves ya. Tom > It should read: aimgrrrl at mindspring dot com
– Jesus was a Vegetarian! http://www.nucleus.com/watchman Iron In Disease http://www.waste.org/~lanshark/vegan/iron.html Iron In Disease http://www.cdc.gov/ncidod/eid/vol5no3/weinberg.htm
Response:
> Naw, don’t buy it. Maybe it’s because there was a recent full moon and I > accidentally drank the distilled water for my iron thinking it was spring > water. Yeah. Oh, and I did get out of the wrong side of the bed, and forgot > my blood pressure medicine last night. That might have done it. > Toni
Absolutely,Toni! for me,I find quarter-moons do it…along with not getting enough chocolate and/or sex. In reality,I surrendered…no matter what I do or don’t do..my flares come and go.I don’t have obvious triggers,or ones I could identify..I tried keeping a diary and came close to being paranoid–thought it was time to stop when I started recording how many times a day I broke wind. Thanks for sharing…it’s an interesting post! — Have courage for the great sorrows of life and patience for the small ones..and when you have laboriously accomplished your daily task, go to sleep in peace.God is awake. Victor Hugo
Response:
> This article speaks to the finding of a ‘limit’ to the amount of iron the > body can control.. It seems the body controls iron partially by the ph.. > —
Hey Toni, arencha glad ya asked? LOL — Di "When one tugs at a single thing in nature, he finds it attached to the rest of the world" John Muir Diane_Abell at msn dot com http://loveyourmother.homestead.com
Response:
– Hide quoted text — Show quoted text -> The other day I was visiting an 82 year old woman w/REALLY bad flare of > psoriasis and exacerbation of psoriatic arthritis. We’re doing a > triamcinolone and syran body wrap and got to talking about "why" and "how" > this exacerbation happened. It suddenly dawned on me that I ALWAYS look for > explanations for flares. Why is that? > No matter how many times they have occurred, no matter how many times I tell > myself there isn’t an explanation – I still look for one. Was it something I > ate, something I did – or didn’t do, how I slept (love it when I say to > myself – "I must have slept funny" – I’m not even sure what that means yet > sometimes it sounds plausible), is it related to the weather – the seasons, > stress, too much exercise or lack there of?? I mean why can’t I accept that > there just isn’t any reason? It just happens. > There have been times when it seems that I’d rather believe some off the > wall reason than accept that there isn’t ANY reason. Is it because I’m > looking for someone/something to blame? Or maybe if I could figure out the > cause I could avoid that precipitating factor the next time? You know, the > "I’ll never do that again" routine. Or maybe I just can’t accept the fact > that this is something I’m not in control of? Now that’s scary. > Hmmm, that must be it. I can’t accept the fact that I’m not in charge. I’m > at the whim of chance and fate. > Naw, don’t buy it. Maybe it’s because there was a recent full moon and I > accidentally drank the distilled water for my iron thinking it was spring > water. Yeah. Oh, and I did get out of the wrong side of the bed, and forgot > my blood pressure medicine last night. That might have done it. > Toni
These articles speak to the ‘explanation’ I have presented. The first two articles speak to the fact the iron excess in the body depletes the body of antioxidants INCLUDING ‘retinol’.. vitamin D.. the ’skin’ vitamin. http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query_old?uid=10669994&… b http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query_old?uid=8063202&f… This article speaks to retinol/vitamin D. http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query_old?uid=9804359&f… Who loves ya. Tom — Jesus was a Vegetarian! http://www.nucleus.com/watchman Iron In Disease http://www.waste.org/~lanshark/vegan/iron.html Iron In Disease http://www.cdc.gov/ncidod/eid/vol5no3/weinberg.htm
Response:
Almost everything that happens was "caused." We may never know what the cause of RA flares is/are, and we might not be able to do anything about the cause even if we knew, but often we can find the cause and do something about it. I’d say keep working on it, while realizing it is a long shot. It might be someone with no more knowledge than you who figures it out. :) Cush Toni Brush wrote – Hide quoted text — Show quoted text ->I mean why can’t I accept that >there just isn’t any reason? It just happens.
Response:
>Hmmm, that must be it. I can’t accept the fact that I’m not in charge. I’m >at the whim of chance and fate. >Naw, don’t buy it. Maybe it’s because there was a recent full moon and I >accidentally drank the distilled water for my iron thinking it was spring >water. Yeah. Oh, and I did get out of the wrong side of the bed, and forgot >my blood pressure medicine last night. That might have done it.
Toni, I think we all go through that, constantly trying to figure out what’s made us worse or what’s made us better. I think what it boils down to is the fact that we all hate having no control over something. The worse feeling is to stand by and watch something happen and not be able to do anything about it and not even understand why it’s happening. Or, as Oprah would say, we have no power. So, I don’t think we will ever stop searching for answers to this roller coaster ride that makes no sense. We’re just desperately seeking some control or power. As you said, you can’t accept that you’re not in charge. Judy Wisconsin
Response:
The other day I was visiting an 82 year old woman w/REALLY bad flare of psoriasis and exacerbation of psoriatic arthritis. We’re doing a triamcinolone and syran body wrap and got to talking about "why" and "how" this exacerbation happened. It suddenly dawned on me that I ALWAYS look for explanations for flares. Why is that? No matter how many times they have occurred, no matter how many times I tell myself there isn’t an explanation – I still look for one. Was it something I ate, something I did – or didn’t do, how I slept (love it when I say to myself – "I must have slept funny" – I’m not even sure what that means yet sometimes it sounds plausible), is it related to the weather – the seasons, stress, too much exercise or lack there of?? I mean why can’t I accept that there just isn’t any reason? It just happens. There have been times when it seems that I’d rather believe some off the wall reason than accept that there isn’t ANY reason. Is it because I’m looking for someone/something to blame? Or maybe if I could figure out the cause I could avoid that precipitating factor the next time? You know, the "I’ll never do that again" routine. Or maybe I just can’t accept the fact that this is something I’m not in control of? Now that’s scary. Hmmm, that must be it. I can’t accept the fact that I’m not in charge. I’m at the whim of chance and fate. Naw, don’t buy it. Maybe it’s because there was a recent full moon and I accidentally drank the distilled water for my iron thinking it was spring water. Yeah. Oh, and I did get out of the wrong side of the bed, and forgot my blood pressure medicine last night. That might have done it. Toni
Response:
Hi Toni, I think you have noticed something that we all do. I have had two RDs to tell me that if they knew the reason for bad changes in how we are,,,,,,they would know the cause and they just dont know. Harv – Hide quoted text — Show quoted text – > The other day I was visiting an 82 year old woman w/REALLY bad flare of > psoriasis and exacerbation of psoriatic arthritis. We’re doing a > triamcinolone and syran body wrap and got to talking about "why" and "how" > this exacerbation happened. It suddenly dawned on me that I ALWAYS look for > explanations for flares. Why is that? > No matter how many times they have occurred, no matter how many times I tell > myself there isn’t an explanation – I still look for one. Was it something I > ate, something I did – or didn’t do, how I slept (love it when I say to > myself – "I must have slept funny" – I’m not even sure what that means yet > sometimes it sounds plausible), is it related to the weather – the seasons, > stress, too much exercise or lack there of?? I mean why can’t I accept that > there just isn’t any reason? It just happens. > There have been times when it seems that I’d rather believe some off the > wall reason than accept that there isn’t ANY reason. Is it because I’m > looking for someone/something to blame? Or maybe if I could figure out the > cause I could avoid that precipitating factor the next time? You know, the > "I’ll never do that again" routine. Or maybe I just can’t accept the fact > that this is something I’m not in control of? Now that’s scary. > Hmmm, that must be it. I can’t accept the fact that I’m not in charge. I’m > at the whim of chance and fate. > Naw, don’t buy it. Maybe it’s because there was a recent full moon and I > accidentally drank the distilled water for my iron thinking it was spring > water. Yeah. Oh, and I did get out of the wrong side of the bed, and forgot > my blood pressure medicine last night. That might have done it. > Toni
Response:
:… : There have been times when it seems that I’d rather believe some off the : wall reason than accept that there isn’t ANY reason. Is it because I’m : looking for someone/something to blame? Or maybe if I could figure out the : cause I could avoid that precipitating factor the next time? You know, the : "I’ll never do that again" routine. Or maybe I just can’t accept the fact : that this is something I’m not in control of? Now that’s scary. : Hmmm, that must be it. I can’t accept the fact that I’m not in charge. I’m : at the whim of chance and fate. I think you may have something here. I think so because I’m a person who’s actually scared of being in control–I prefer that someone else have both the control and the responsibility for any situation I find myself in. (e.g., for many years, almost all of my biking, except for to and from work, has been on the back seat of a tandem; I keep meeting people who wouldn’t think of giving so up much control) I have OA in the left hip, and my perception of the aches it causes is that the achiness is completely independent of what I do, and even of weather conditions. I can walk 3 miles in a day, or bike for 25, or sit all day staring at the terminal, and that hip will ignore me–ache or not on its own schedule; no, it won’t even react to cold, heat, humidity, changing barometer readings… Could it be that this is only my *perception*? After all, this independence of my life and that of my hip allows me to avoid any thought of trying to control its condition… –thelma : Toni
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