Need help understanding an unclear diagnosis.
Question:
the biopsy is not so much "unclear" as you say, but more like "unspecific". there is a difference. believe it or not, some information is gained from "unspecific" biopsy analysis. i have experience in discussing my biopsy with my derm doc for my pyoderma gangrenosum (pg). pg is determined, in part, using a biopsy result of "unspecific". that is to say that things such as infection, yeast and few other choice nastys are ruled out. if biopsy was performed in the gi is anything similar to a derm biopsy, this could help explain this. so it is possible at least you know in part, what it ain’t (such as you say, cancer was ruled out). jeff
– Hide quoted text — Show quoted text -> My wife started having intestinal problems about 3 months ago. > Initially, the doctor thought the symptoms were classic for a parasite > like giardia. However, after treating her with a strong antibiotic > for a week the problem did not go away. Then he did a colonoscopy > and found that there were a lot of white plaque/lessions throughout > the colon which the doctor described as evidence of inflammation and > ulceration. The originally biopsy came back unclear but ruled out > the possibility of cancer. A 2nd biopsy also came back unclear and > the doctor has said that she has "either a resolving bacterial > infection or IBD". He put her on sulfasalazin which seems to be > resolving her symptoms. > Why can’t the lab results come back more clear? Isn’t pathology able > to analyze the tissue and determine not only the presence of cancer > but also identify either the bacteria/parasite or an inflamation that > can be classified IBD and even whether it is crohns or ulcerative > colotisis? The doctor has said that, after completing 2 months of > the sulfasalazin he wants to initiate treatment with Azulfidine. Our > doctor does not communicate well and his nurse is even more unclear. > Can anyone help us to better understand what might be going on and how > to get a better understanding of what the doctor is trying to > communicate? Any help will be appreciated
Response:
Hi, I don’t know why diagnosing is so difficult for IBD but I too went without a diagnosis until my crohn’s got so bad I ended up in surgery and got diagnosed. What symptoms does she have now? Did her dr do any other tests like bloods, urine, scans or anything else? Sometime they can get a better diagnosis with more of the tests done. I would suggest you get a gi who you can communicate with and understand. It is important to be able to talk to the dr and ask questions and understand what you are being told. If you haven’t visited the Crohn’s Colitis Foundation of America the address is www.ccfa.org to learn more about what IBD is. UM MOM Susan
– Hide quoted text — Show quoted text -> My wife started having intestinal problems about 3 months ago. > Initially, the doctor thought the symptoms were classic for a parasite > like giardia. However, after treating her with a strong antibiotic > for a week the problem did not go away. Then he did a colonoscopy > and found that there were a lot of white plaque/lessions throughout > the colon which the doctor described as evidence of inflammation and > ulceration. The originally biopsy came back unclear but ruled out > the possibility of cancer. A 2nd biopsy also came back unclear and > the doctor has said that she has "either a resolving bacterial > infection or IBD". He put her on sulfasalazin which seems to be > resolving her symptoms. > Why can’t the lab results come back more clear? Isn’t pathology able > to analyze the tissue and determine not only the presence of cancer > but also identify either the bacteria/parasite or an inflamation that > can be classified IBD and even whether it is crohns or ulcerative > colotisis? The doctor has said that, after completing 2 months of > the sulfasalazin he wants to initiate treatment with Azulfidine. Our > doctor does not communicate well and his nurse is even more unclear. > Can anyone help us to better understand what might be going on and how > to get a better understanding of what the doctor is trying to > communicate? Any help will be appreciated
Response:
Hi, your wife’s story is so similar to my own. Two and a half years ago I got food poisoning, along with two other members of my family. That led to a disasterous series of episodes that left me seriously ill and unable to walk, talk, eat or sleep for two months. I am still unwell and had to fly to see a Specialist overseas who diagnosed Crohn’s Disease with a bacterial infection although he couldn’t ascertain what it was. I accepteed my diagnoses and looked in to the anti MAP treatment for Crohn’s Disease (this bacteria is thought to cause Crohn’s in some people). Anyway, after my first appointment with my new Gastroenterologist in my own country he says he doesn’t know if I do have Crohn’s, there is no doubt about bacteria having been there as it’s caused damage in the intestine but he doesn’t know if it’s Crohn’s. He thinks I have post infectious IBS although my symptoms seem to be very systemic in nature and it is two years and eleven months since I started with the food poisoning, I feel as if I still have a bacteria lurking. I have done parasite cleanses and taken antibiotics too. Nothing much has helped. I am desperate to be well, prior to this I was never ill. I would suggest you get your wife a good Gastroenterologist and don’t get swept in to dodgy theories and buying dodgy products. Look at this site for info, and it may tell you some things about parasites you didn’t know, although it is quite specifically based around two parasites. www.badbugs.org Emsy
Response:
My wife started having intestinal problems about 3 months ago. Initially, the doctor thought the symptoms were classic for a parasite like giardia. However, after treating her with a strong antibiotic for a week the problem did not go away. Then he did a colonoscopy and found that there were a lot of white plaque/lessions throughout the colon which the doctor described as evidence of inflammation and ulceration. The originally biopsy came back unclear but ruled out the possibility of cancer. A 2nd biopsy also came back unclear and the doctor has said that she has "either a resolving bacterial infection or IBD". He put her on sulfasalazin which seems to be resolving her symptoms. Why can’t the lab results come back more clear? Isn’t pathology able to analyze the tissue and determine not only the presence of cancer but also identify either the bacteria/parasite or an inflamation that can be classified IBD and even whether it is crohns or ulcerative colotisis? The doctor has said that, after completing 2 months of the sulfasalazin he wants to initiate treatment with Azulfidine. Our doctor does not communicate well and his nurse is even more unclear. Can anyone help us to better understand what might be going on and how to get a better understanding of what the doctor is trying to communicate? Any help will be appreciated
Response:
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