Alternative medicine
Question:
>Oldfashioned herbalists never did divulge their formulas; >unfortunate, as others could then benefit from them; but if they >work….why not go for it?
For one reason, some unprincipled "herbalists" put prednisone in their herbal concoctions. Since a bump of prednisone makes almost everybody feel better in the short run, the herbalist sells more of his wares, at higher prices. Meanwhile, his clients don’t know enough to be concerned about the side-effects of the prednisone, or the dangers of sudden cessation. On the other hand, the herbalist who uses prednisone surreptitiously is not likely to tell you the truth about it. — Wayne Marsh – Minneapolis, Minnesota, USA
Response:
>’another mad in 10 months’ …yes, an unfortunate typographic error; it >should of course have been ‘man’!! >Who says there is no ‘cure’ for colitis? Remission implies the condition >will some day return, but how do you know? Describing complete recovery >as remission rather than cure is surely negative thinking! >Oldfashioned herbalists never did divulge their formulas; >unfortunate, as others could then benefit from them; but if they >work….why not go for it?
Because I never put a medication in my mouth that my doctor doesn’t give me. ( that includes a headache medication) Right now I am on medications that have me feeling pretty well most of the time, or at least well enough not to make me a hermit and have some sort of social life. I am not about to try anything that may screw that up and make me slide back on my way to remission. Terri S
Response:
their formulas; >unfortunate, as others could then benefit from them; but if they >work….why not go for it? >Karl.
Because they may interact with your other medications in a harmful way. Most of us have difficulty with fiber which is very helpful to the rest of the population. The same could be true with remedies from herbalists. Always talk to your doctor first.
Response:
‘another mad in 10 months’ …yes, an unfortunate typographic error; it should of course have been ‘man’!! Who says there is no ‘cure’ for colitis? Remission implies the condition will some day return, but how do you know? Describing complete recovery as remission rather than cure is surely negative thinking! Oldfashioned herbalists never did divulge their formulas; unfortunate, as others could then benefit from them; but if they work….why not go for it? Karl.
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The first time i tried acupunture I felt like my colitis went away completely but when I stopped going, the inflamation all came back in a week. I tried acupunture after that for a month & it didn’t do anything. I think when they come out with a cure for arthritis they will have the cure for colitis. Mine is caused be arthritis. I can feel whats happening in my body. — Stan’s Short Stories http://www.meinc.com/stan
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I have mild colitis and would like to know if anyone has had any success with acupuncture or any other alternative therapys.
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hi rob.. please read my post titled alternative medicines!! please feel free to email me if u have any questions cindymae – Hide quoted text — Show quoted text -> I have mild colitis and would like to know if anyone has had any success > with acupuncture or any other alternative therapys.
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Acupunture helped for awhile. Multi-enzymes helped my colitis alot. – Hide quoted text — Show quoted text – > Hi, I know this question has been asked a million times but could > anyone help me? I suffer with CD and it never goes away, I take > 3000mg of Salazopyrin daily and lately because my joints are inflammed > so much, I am taking 400mg of Celebrex. I am finding it difficult to > walk and I am exhausted. I really want to try something that will > help with my joints etc, I was going to see a chinese medical expert, > does anyone have any expereince in this kind of treatment? > Lou
Response:
Hi, Here is a list of things I have researched and have either tried or will try: Accupressure, works well but temporary effects. Naturopathy, helps the rest of me feel better. On this note, there is a theory by Dr Jonn Matsen that heavy metal poisoning (not detectable on blood tests because it is deposited in the organs) is responsible for the severety of a lot of autoimmune disease. He has a book, Eating Alive 2 that explains this theory, his diet and what you can do. I will be researching this more and will probably do his chelation therapy. (You can Google him, he has a website). Chinese medicine, have my first appointment in August. The principals are very, very similar to accupressure. I’m hoping for consistant relief with this given the success of the accupressure. Other than that I do relaxation stuff, crystal stuff (for fun) and take my meds. My GE knows everyting I’m doing and is supportive if it makes me feel better. Best wishes and let us know what works for you! NinaW
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This has nothing to do with alternative meds, but Vioxx works better for me than Celebrex. Of course, it won’t help with the chronic fatigue 
. S
– Hide quoted text — Show quoted text -> Hi, I know this question has been asked a million times but could > anyone help me? I suffer with CD and it never goes away, I take > 3000mg of Salazopyrin daily and lately because my joints are inflammed > so much, I am taking 400mg of Celebrex. I am finding it difficult to > walk and I am exhausted. I really want to try something that will > help with my joints etc, I was going to see a chinese medical expert, > does anyone have any expereince in this kind of treatment? > Lou
Response:
> Hi, I know this question has been asked a million times but could > anyone help me? I suffer with CD and it never goes away, I take > 3000mg of Salazopyrin daily and lately because my joints are inflammed > so much, I am taking 400mg of Celebrex. I am finding it difficult to > walk and I am exhausted. I really want to try something that will > help with my joints etc, I was going to see a chinese medical expert, > does anyone have any expereince in this kind of treatment? > Lou
lou i dont know about chinese tx…but i am on relafen(namubetol?)..i can never spell it..lol…its a prescription..its better than celebrex and it shouldnt cause any gut problems..i take two a day..and my joints arent perfect but its a whole lot better than it was..i am walking 1-2miles on most days..lifting things again..etc..its made a world of difference.. annie
Response:
I tried plain glucosamine also, but it just didn’t help me. I still find exercise is the best thing for the joint pain. When I am less active I hurt more. I do a combo of aerobic and resistance, and walk a lot. – Hide quoted text — Show quoted text – >Carol if you used Chondroitin then you definitly didn’t go with a >Pharmaceutical grade supplement….A lot of quality control issues with >Chondroitin. And that could easily be why it didn’t work.Plus Chondroitin >has never been proven to help glucosamione sulphate work better so why would >someone take it with Chondroiton? Chondrotin is used more as a buzz word to >suck people in. > Maybe because for many people glucosamine is hard to break down in the > system? I know it nearly threw me into a flare, and I’ve been in a > symptom free remission for 9+ years now. My Gi said the digestive > upset is not an uncommon reaction. So if anyone wants to try it, I > would start slowly. BTW, it did absolutely nothing for my joint pain > either. (And I tried both with chondroitin and without it.) > >No, can’t say i have had any experience with chinese mediicne, but why >not > >try taking a high quality glucosamine supplement? from the way the >research > >is going, it looks like Glucosamine is not only good at stopping joint >pain > >but it may even reverse some of the damage.Tumeric extract also makes for >a > >real safe cox2 > >antiinflammatory and it may even be beneficial to use with > >IBD. > >A book you may want to try is DR. Ray D. Strand’s > >"What Your Doctor Doesn’t Know About Nutritional Medicine Maybe Killing >You" > >> Hi, I know this question has been asked a million times but could > >> anyone help me? I suffer with CD and it never goes away, I take > >> 3000mg of Salazopyrin daily and lately because my joints are inflammed > >> so much, I am taking 400mg of Celebrex. I am finding it difficult to > >> walk and I am exhausted. I really want to try something that will > >> help with my joints etc, I was going to see a chinese medical expert, > >> does anyone have any expereince in this kind of treatment? > >> Lou
Response:
Carol if you used Chondroitin then you definitly didn’t go with a Pharmaceutical grade supplement….A lot of quality control issues with Chondroitin. And that could easily be why it didn’t work.Plus Chondroitin has never been proven to help glucosamione sulphate work better so why would someone take it with Chondroiton? Chondrotin is used more as a buzz word to suck people in.
– Hide quoted text — Show quoted text -> Maybe because for many people glucosamine is hard to break down in the > system? I know it nearly threw me into a flare, and I’ve been in a > symptom free remission for 9+ years now. My Gi said the digestive > upset is not an uncommon reaction. So if anyone wants to try it, I > would start slowly. BTW, it did absolutely nothing for my joint pain > either. (And I tried both with chondroitin and without it.) >No, can’t say i have had any experience with chinese mediicne, but why not >try taking a high quality glucosamine supplement? from the way the research >is going, it looks like Glucosamine is not only good at stopping joint pain >but it may even reverse some of the damage.Tumeric extract also makes for a >real safe cox2 >antiinflammatory and it may even be beneficial to use with >IBD. >A book you may want to try is DR. Ray D. Strand’s >"What Your Doctor Doesn’t Know About Nutritional Medicine Maybe Killing You" >> Hi, I know this question has been asked a million times but could >> anyone help me? I suffer with CD and it never goes away, I take >> 3000mg of Salazopyrin daily and lately because my joints are inflammed >> so much, I am taking 400mg of Celebrex. I am finding it difficult to >> walk and I am exhausted. I really want to try something that will >> help with my joints etc, I was going to see a chinese medical expert, >> does anyone have any expereince in this kind of treatment? >> Lou
Response:
I haven’t posted in a while but used to be a regular here for about 3 years, gosh has it been that long. Anyway I actually studied a number of alternative therapies for a number of years starting over 20 years ago. But when I got UC I didn’t think to try those alternative since IBD was not one of the diseases that we learned to treat. But after joining the group I became keenly interested in anyone having any experience with alternatives. Mainly because what I read about conventional medical treatments really didn’t sound all that good, to say the least. Also having had some training I kind of knew what seemed to make sense and I had some understanding of what might really work. Also I chose a doctor who practiced integrative medicine which combines conventional and alternative therapies. To make a long story not so long, I’ve seen quite a few people who reported good results from a number of therapies. But my own opinion, and experience, is that it may take some combination of therapies including conventional ones, and the particular treatments will vary from person to person. A number of people have reported positive results from these treatments Acupuncture Dietary restrictions Nutritional supplements Exercise Stress reduction Probiotic supplements Having actually studied acupuncture for 2 years and completing a comprehensive program of study I can understand how and why it can help. But if your disease has a nutritional component then it won’t necessarily make up for that in the long term. But acupuncture does place a huge importance on diet and health. Even recently in the Boston Globe they had a report from the NE Journal of Medicine on a study where they gave people with AIDS (in Africa) a simple multi-vitamin and it went a long way in reducing there symptoms and staving off the effects of the disease. Of course they may have been more prone to mal or under nutrition to begin with so one must be careful about the conclustions. However I believe (from study and experience) that nutrition can play an important role in the IBD patient. Many if not all alternatives have a basis on making the body more healthy from a more systemic standpoint. In other words making sure you eat right, exercise and take care of your mental health as well. Disease is said to arise when these fundamental elements are not in balance. Of course there are hereditary or genetic components to many diseases and also infectious diseases that can occur as well. But even those in many cases can be improved by taking proper care of oneself. As for myself I’ve found that a number of supplements including vitamins, minerals and green foods has helped my symptoms. I also take some antibiotics and asacol, but really stopped the asacol a while back. I also try to avoid spicy foods and chocolate and coffee, which is not easy since I love them. I have UC though so this may not be indicated in your situation. Anyway, if you are interested in alternatives you might want to look back through past posting as there has been a lot written on the subject. You will find some strong disagreements but I would focus on those people who report good results. Most of the negative stuff (IMHO) comes from people who have a negative opinion to begin with rather than having actual experience. As will all things you should educate yourself as much as possible. Even alternatives can have negative effects if not done properly or to excess. But generally they are safe if administered correctly. Regards, Jeff
– Hide quoted text — Show quoted text -> Hi, I know this question has been asked a million times but could > anyone help me? I suffer with CD and it never goes away, I take > 3000mg of Salazopyrin daily and lately because my joints are inflammed > so much, I am taking 400mg of Celebrex. I am finding it difficult to > walk and I am exhausted. I really want to try something that will > help with my joints etc, I was going to see a chinese medical expert, > does anyone have any expereince in this kind of treatment? > Lou
Response:
Maybe because for many people glucosamine is hard to break down in the system? I know it nearly threw me into a flare, and I’ve been in a symptom free remission for 9+ years now. My Gi said the digestive upset is not an uncommon reaction. So if anyone wants to try it, I would start slowly. BTW, it did absolutely nothing for my joint pain either. (And I tried both with chondroitin and without it.) – Hide quoted text — Show quoted text – >No, can’t say i have had any experience with chinese mediicne, but why not >try taking a high quality glucosamine supplement? from the way the research >is going, it looks like Glucosamine is not only good at stopping joint pain >but it may even reverse some of the damage.Tumeric extract also makes for a >real safe cox2 >antiinflammatory and it may even be beneficial to use with >IBD. >A book you may want to try is DR. Ray D. Strand’s >"What Your Doctor Doesn’t Know About Nutritional Medicine Maybe Killing You" > Hi, I know this question has been asked a million times but could > anyone help me? I suffer with CD and it never goes away, I take > 3000mg of Salazopyrin daily and lately because my joints are inflammed > so much, I am taking 400mg of Celebrex. I am finding it difficult to > walk and I am exhausted. I really want to try something that will > help with my joints etc, I was going to see a chinese medical expert, > does anyone have any expereince in this kind of treatment? > Lou
Response:
No, can’t say i have had any experience with chinese mediicne, but why not try taking a high quality glucosamine supplement? from the way the research is going, it looks like Glucosamine is not only good at stopping joint pain but it may even reverse some of the damage.Tumeric extract also makes for a real safe cox2 antiinflammatory and it may even be beneficial to use with IBD. A book you may want to try is DR. Ray D. Strand’s "What Your Doctor Doesn’t Know About Nutritional Medicine Maybe Killing You"
– Hide quoted text — Show quoted text -> Hi, I know this question has been asked a million times but could > anyone help me? I suffer with CD and it never goes away, I take > 3000mg of Salazopyrin daily and lately because my joints are inflammed > so much, I am taking 400mg of Celebrex. I am finding it difficult to > walk and I am exhausted. I really want to try something that will > help with my joints etc, I was going to see a chinese medical expert, > does anyone have any expereince in this kind of treatment? > Lou
Response:
Hi, I know this question has been asked a million times but could anyone help me? I suffer with CD and it never goes away, I take 3000mg of Salazopyrin daily and lately because my joints are inflammed so much, I am taking 400mg of Celebrex. I am finding it difficult to walk and I am exhausted. I really want to try something that will help with my joints etc, I was going to see a chinese medical expert, does anyone have any expereince in this kind of treatment? Lou
Response:
> Hi, I know this question has been asked a million times but could > anyone help me? I suffer with CD and it never goes away, I take > 3000mg of Salazopyrin daily and lately because my joints are inflammed > so much, I am taking 400mg of Celebrex. I am finding it difficult to > walk and I am exhausted. I really want to try something that will > help with my joints etc, I was going to see a chinese medical expert, > does anyone have any expereince in this kind of treatment? > Lou
Well, I can tell you based on my long term CD experience that the few occasions I consulted alternative practitioners(accupuncture, chiropractic), it didn’t work. Actually a coupla times it did work at the outset but for such a short time(demonstrating to me the so-called "placebo effect"). Mark Mandell
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Anyone interested in Coenzyme Q10 should look at this. It’s a site that specializes in Coenzyme Q10, and has an extensive medical references section on Coenzyme Q10 and disease, including specialized information on heart disease. http://www.ashapharma.com (homepage)
Response:
Anyone interested in REAL and OBJECTIVE information should probably NOT check with ashapharma site. The anonymous poster of this message makes the site AWFULLY suspicious. – Hide quoted text — Show quoted text – > Anyone interested in Coenzyme Q10 should look at this. It’s a site that specializes in Coenzyme Q10, and has an extensive medical references section on Coenzyme Q10 and disease, including specialized information on heart disease. > http://www.ashapharma.com (homepage)
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>Anyone interested in REAL and OBJECTIVE information should probably NOT >check with ashapharma site. The anonymous poster of this message makes >the site AWFULLY suspicious.
Their products are good quality though, and at excellent prices. (no connection with them, I’m just a satisfied customer.)
Response:
Anyone interested in Coenzyme Q10 should look at this. It’s a site that specializes in Coenzyme Q10, and has an extensive medical references section on Coenzyme Q10 and disease, including specialized information on heart disease. http://www.ashapharma.com (homepage)
Response:
Anyone interested in REAL and OBJECTIVE information should probably NOT check with ashapharma site. The anonymous poster of this message makes the site AWFULLY suspicious. – Hide quoted text — Show quoted text – > Anyone interested in Coenzyme Q10 should look at this. It’s a site that specializes in Coenzyme Q10, and has an extensive medical references section on Coenzyme Q10 and disease, including specialized information on heart disease. > http://www.ashapharma.com (homepage)
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>Anyone interested in REAL and OBJECTIVE information should probably NOT >check with ashapharma site. The anonymous poster of this message makes >the site AWFULLY suspicious.
Their products are good quality though, and at excellent prices. (no connection with them, I’m just a satisfied customer.)
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