Kidney issues….
Question:
To be honest, I haven’t a clue. I didn’t know that it was being done till afterwards. They forgot to tell me and explained it to my family. I just never was too concerned to ask any more questions. I had stones, very tiny ones still passing for a few months after the surgery and then they stopped, with the pain thank goodness. UM MOM Susan
– Hide quoted text — Show quoted text -> Susan, > It sounds like they put a ureteral stent in. It’s a "tube" that goes > from your kidney to your bladder. It would protect your ureteral > lining and if a really big stone jammed it they could just pull out > the stent with the stone in it. (An easy extraction). > Does that sound right to you? > NinaW > I had some of these symptoms last year before surgery and it ended up > being > stones in either my bladder or kidneys but they started to pass by > themselves. The urologist went in with my surgeon and put a seton (sp?) > in > to help protect me from being cut up anymore. I am not having problems > with > them now for quite a few months. Maybe they will find stones and an > infection like they did me, it’s a pretty easy fix at least it was for > me. > I’d been interested in hearing how it goes. UM MOM Susan
Response:
Susan, It sounds like they put a ureteral stent in. It’s a "tube" that goes from your kidney to your bladder. It would protect your ureteral lining and if a really big stone jammed it they could just pull out the stent with the stone in it. (An easy extraction). Does that sound right to you? NinaW – Hide quoted text — Show quoted text – > I had some of these symptoms last year before surgery and it ended up being > stones in either my bladder or kidneys but they started to pass by > themselves. The urologist went in with my surgeon and put a seton (sp?) in > to help protect me from being cut up anymore. I am not having problems with > them now for quite a few months. Maybe they will find stones and an > infection like they did me, it’s a pretty easy fix at least it was for me. > I’d been interested in hearing how it goes. UM MOM Susan
Response:
I had some of these symptoms last year before surgery and it ended up being stones in either my bladder or kidneys but they started to pass by themselves. The urologist went in with my surgeon and put a seton (sp?) in to help protect me from being cut up anymore. I am not having problems with them now for quite a few months. Maybe they will find stones and an infection like they did me, it’s a pretty easy fix at least it was for me. I’d been interested in hearing how it goes. UM MOM Susan : – Hide quoted text — Show quoted text -> Hi All, > I went to a GP yesterday and found out what all of my results were. On > Oct > 9, my GFR was 90, which is normal. On Oct 23, it was down to 56. I just > got my results from November 6 and my GFR was 54. My GP had me give a > urine > sample, which he dipped right there, and found that there was protein, > blood > and white blood cells in my urine, all of which are abnormal. I went to > a > lab today to do a further urinalysis and I have to go back to see the GP > next Wednesday. The GP has already said that > he will likely refer me to a nephrologist. They are not sure what is > causing this > so they want to figure that out. I am monitoring my temperature, and if > starts > to climb, or if I have more lower back pain, or pain during urination, I > will go to the ER. > I have been reading up on causes of kidney disease related to Crohn’s and > there are a lot of different things that can > happen. > On the plus side, I think that I am going to keep the GP that I found. > He > seemed bright, knows that I need a referral and > he had a sense of humour….all very important. > Ann >>Hi all, >>My Doctor called me at home and at work and e-mailed me the other day to >>tell me that I needed to get a GP, because my bloodwork is showing that >>there are now some issues with my kidneys. A couple of weeks ago, she > told >>me that my hemoglobin is really low and that I have an increase in white >>cells. Now my blood work shows that my glomerular filtration rate (GFR) > is >>too low and they are concerned about my kidney function. My GFR was 56. >>Should I be concerned? Should I be really worried? I have been having > some >>lower back pain, but no pain during urination or anything. I am on >>prednisone and Imuran, could these meds be causing this? I am getting so >>tired of this….I don’t know how much more I can take. >>:-( >>Ann
Response:
Ann, He sounds like a keeper. I am glad he is following you so closely. Good luck! 
mgbio – Hide quoted text — Show quoted text – > Hi All, > I went to a GP yesterday and found out what all of my results were. On Oct > 9, my GFR was 90, which is normal. On Oct 23, it was down to 56. I just > got my results from November 6 and my GFR was 54. My GP had me give a urine > sample, which he dipped right there, and found that there was protein, blood > and white blood cells in my urine, all of which are abnormal. I went to a > lab today to do a further urinalysis and I have to go back to see the GP > next Wednesday. The GP has already said that > he will likely refer me to a nephrologist. They are not sure what is > causing this > so they want to figure that out. I am monitoring my temperature, and if > starts > to climb, or if I have more lower back pain, or pain during urination, I > will go to the ER. > I have been reading up on causes of kidney disease related to Crohn’s and > there are a lot of different things that can > happen. > On the plus side, I think that I am going to keep the GP that I found. He > seemed bright, knows that I need a referral and > he had a sense of humour….all very important. > Ann >Hi all, >My Doctor called me at home and at work and e-mailed me the other day to >tell me that I needed to get a GP, because my bloodwork is showing that >there are now some issues with my kidneys. A couple of weeks ago, she > told >me that my hemoglobin is really low and that I have an increase in white >cells. Now my blood work shows that my glomerular filtration rate (GFR) > is >too low and they are concerned about my kidney function. My GFR was 56. >Should I be concerned? Should I be really worried? I have been having > some >lower back pain, but no pain during urination or anything. I am on >prednisone and Imuran, could these meds be causing this? I am getting so >tired of this….I don’t know how much more I can take. >:-( >Ann
Response:
Hi All, I went to a GP yesterday and found out what all of my results were. On Oct 9, my GFR was 90, which is normal. On Oct 23, it was down to 56. I just got my results from November 6 and my GFR was 54. My GP had me give a urine sample, which he dipped right there, and found that there was protein, blood and white blood cells in my urine, all of which are abnormal. I went to a lab today to do a further urinalysis and I have to go back to see the GP next Wednesday. The GP has already said that he will likely refer me to a nephrologist. They are not sure what is causing this so they want to figure that out. I am monitoring my temperature, and if starts to climb, or if I have more lower back pain, or pain during urination, I will go to the ER. I have been reading up on causes of kidney disease related to Crohn’s and there are a lot of different things that can happen. On the plus side, I think that I am going to keep the GP that I found. He seemed bright, knows that I need a referral and he had a sense of humour….all very important. Ann
– Hide quoted text — Show quoted text -> Hi all, > My Doctor called me at home and at work and e-mailed me the other day to > tell me that I needed to get a GP, because my bloodwork is showing that > there are now some issues with my kidneys. A couple of weeks ago, she told > me that my hemoglobin is really low and that I have an increase in white > cells. Now my blood work shows that my glomerular filtration rate (GFR) is > too low and they are concerned about my kidney function. My GFR was 56. > Should I be concerned? Should I be really worried? I have been having some > lower back pain, but no pain during urination or anything. I am on > prednisone and Imuran, could these meds be causing this? I am getting so > tired of this….I don’t know how much more I can take. > 
> Ann
Response:
My experiences agree with Lisa. I kept getting bladder infections and I asked my GP if it could have something to do with my Crohn’s. He said, "Oh no, you would have feces in your urine". For about 2 weeks, I kept getting fevers and bad chills. One night, I had the worst pain, went to the bathroom and pooped in my urine. I went to the emergency and my urine sample was mud. First thing the ER doctor said without running any further tests was I think you have a fistula to your bladder caused by your Crohn’s. The ER in my city is set-up in two sections: minor treatment and surgical/acute treatment. ER doctors are usually bag on diagnosing a patient in crisis and needing emergency treatment. Nina K. – Hide quoted text — Show quoted text – > Mike: > I received almost identical advice from my doctor’s office PRIOR to ending > up in the ER two days later with a temperature of 105! I came VERY close to > loosing my life – so close that my husband was asked to "call any family > members who are out of town to let them know how serious it was". > It is because of a lack of understanding of our compromised immune systems > by most physicians that quite a LOT of people with Crohn’s and Colitis face > that cause additional problems in the long run. While you are correct in > saying that MOST kidney issues are chronic and require additional analysis, > you fail to account for the shortened progression time for the rest of us. > I, and far too many others have had to learn the hard way that sometimes we > have to listen to what our bodies are saying to us and not rely on our > doctor’s interpretations of those messages. Like it or not, one of the best > places to receive a comprehensive exam that will actually find out whether > or not there is a medical crisis is the local emergency room. > ~Lisa S. Quinn > AAAAAARGGHHH!!! Don’t go to the emergency room unless your doctor says > so!!! > Gawd, you folks are all runing to the emergency room all the time. No > wonder the price of American health care is so high. > Unless you aren’t peeing at all or peeing gallons a day, it probably can > wait until monday. The doctor didn’t admit you, so I’m sure that it’s > fine > for now. If youa re really concerned, call his answering service for > advice. Most kidney issues are chronic, and you will probably be sent to > a > nephrologist for evaluation and treatment. > Thanks, > Mike > — > To reply via email remove the X’s from my email address: >> Ann: >> Do NOT wait any longer – go to the Emergency Room as quickly as you are >> able. When this happened to me, I ended up being hospitalized for over a >> week with a severe Kidney infection – one that came very close to death. >> This is not the time to "wait and see" go now! >> Best wishes for a speedy and pain free recovery… >> ~Lisa >> > Hi all, >> > My Doctor called me at home and at work and e-mailed me the other day >> > to >> > tell me that I needed to get a GP, because my bloodwork is showing that >> > there are now some issues with my kidneys. A couple of weeks ago, she >> > told >> > me that my hemoglobin is really low and that I have an increase in >> > white >> > cells. Now my blood work shows that my glomerular filtration rate >> > (GFR) >> > is >> > too low and they are concerned about my kidney function. My GFR was >> > 56. >> > Should I be concerned? Should I be really worried? I have been having >> > some >> > lower back pain, but no pain during urination or anything. I am on >> > prednisone and Imuran, could these meds be causing this? I am getting > so >> > tired of this….I don’t know how much more I can take. >> > >> > Ann
Response:
You need a GP for your kidneys or a nephrologist, who specializes in kidney disease? Immuran could cause kidney damage and pred. causes so much systemic damage that I don’t put kidneys beyond their reach. I would call your GI and ask for a more detailed explanation of what the problem is and exactly what type of specialist you should seek for advice. Ask your GI if there is anyone that he/she has worked with who is familiar w/ CD patients who accepts your insurance. Good luck! mgbio – Hide quoted text — Show quoted text – > Hi all, > My Doctor called me at home and at work and e-mailed me the other day to > tell me that I needed to get a GP, because my bloodwork is showing that > there are now some issues with my kidneys. A couple of weeks ago, she told > me that my hemoglobin is really low and that I have an increase in white > cells. Now my blood work shows that my glomerular filtration rate (GFR) is > too low and they are concerned about my kidney function. My GFR was 56. > Should I be concerned? Should I be really worried? I have been having some > lower back pain, but no pain during urination or anything. I am on > prednisone and Imuran, could these meds be causing this? I am getting so > tired of this….I don’t know how much more I can take. > > Ann
Response:
Mike: I received almost identical advice from my doctor’s office PRIOR to ending up in the ER two days later with a temperature of 105! I came VERY close to loosing my life – so close that my husband was asked to "call any family members who are out of town to let them know how serious it was". It is because of a lack of understanding of our compromised immune systems by most physicians that quite a LOT of people with Crohn’s and Colitis face that cause additional problems in the long run. While you are correct in saying that MOST kidney issues are chronic and require additional analysis, you fail to account for the shortened progression time for the rest of us. I, and far too many others have had to learn the hard way that sometimes we have to listen to what our bodies are saying to us and not rely on our doctor’s interpretations of those messages. Like it or not, one of the best places to receive a comprehensive exam that will actually find out whether or not there is a medical crisis is the local emergency room. ~Lisa S. Quinn – Hide quoted text — Show quoted text -> AAAAAARGGHHH!!! Don’t go to the emergency room unless your doctor says > so!!! > Gawd, you folks are all runing to the emergency room all the time. No > wonder the price of American health care is so high. > Unless you aren’t peeing at all or peeing gallons a day, it probably can > wait until monday. The doctor didn’t admit you, so I’m sure that it’s > fine > for now. If youa re really concerned, call his answering service for > advice. Most kidney issues are chronic, and you will probably be sent to > a > nephrologist for evaluation and treatment. > Thanks, > Mike > — > To reply via email remove the X’s from my email address: > Ann: > Do NOT wait any longer – go to the Emergency Room as quickly as you are > able. When this happened to me, I ended up being hospitalized for over a > week with a severe Kidney infection – one that came very close to death. > This is not the time to "wait and see" go now! > Best wishes for a speedy and pain free recovery… > ~Lisa > > Hi all, > > My Doctor called me at home and at work and e-mailed me the other day > > to > > tell me that I needed to get a GP, because my bloodwork is showing that > > there are now some issues with my kidneys. A couple of weeks ago, she > > told > > me that my hemoglobin is really low and that I have an increase in > > white > > cells. Now my blood work shows that my glomerular filtration rate > > (GFR) > > is > > too low and they are concerned about my kidney function. My GFR was > > 56. > > Should I be concerned? Should I be really worried? I have been having > > some > > lower back pain, but no pain during urination or anything. I am on > > prednisone and Imuran, could these meds be causing this? I am getting > so > > tired of this….I don’t know how much more I can take. > > > > Ann
Response:
AAAAAARGGHHH!!! Don’t go to the emergency room unless your doctor says so!!! Gawd, you folks are all runing to the emergency room all the time. No wonder the price of American health care is so high. Unless you aren’t peeing at all or peeing gallons a day, it probably can wait until monday. The doctor didn’t admit you, so I’m sure that it’s fine for now. If youa re really concerned, call his answering service for advice. Most kidney issues are chronic, and you will probably be sent to a nephrologist for evaluation and treatment. Thanks, Mike — To reply via email remove the X’s from my email address: – Hide quoted text — Show quoted text -> Ann: > Do NOT wait any longer – go to the Emergency Room as quickly as you are > able. When this happened to me, I ended up being hospitalized for over a > week with a severe Kidney infection – one that came very close to death. > This is not the time to "wait and see" go now! > Best wishes for a speedy and pain free recovery… > ~Lisa > Hi all, > My Doctor called me at home and at work and e-mailed me the other day to > tell me that I needed to get a GP, because my bloodwork is showing that > there are now some issues with my kidneys. A couple of weeks ago, she > told > me that my hemoglobin is really low and that I have an increase in white > cells. Now my blood work shows that my glomerular filtration rate (GFR) > is > too low and they are concerned about my kidney function. My GFR was 56. > Should I be concerned? Should I be really worried? I have been having > some > lower back pain, but no pain during urination or anything. I am on > prednisone and Imuran, could these meds be causing this? I am getting so > tired of this….I don’t know how much more I can take. > > Ann
Response:
Ann: Do NOT wait any longer – go to the Emergency Room as quickly as you are able. When this happened to me, I ended up being hospitalized for over a week with a severe Kidney infection – one that came very close to death. This is not the time to "wait and see" go now! Best wishes for a speedy and pain free recovery… ~Lisa
– Hide quoted text — Show quoted text -> Hi all, > My Doctor called me at home and at work and e-mailed me the other day to > tell me that I needed to get a GP, because my bloodwork is showing that > there are now some issues with my kidneys. A couple of weeks ago, she > told > me that my hemoglobin is really low and that I have an increase in white > cells. Now my blood work shows that my glomerular filtration rate (GFR) > is > too low and they are concerned about my kidney function. My GFR was 56. > Should I be concerned? Should I be really worried? I have been having > some > lower back pain, but no pain during urination or anything. I am on > prednisone and Imuran, could these meds be causing this? I am getting so > tired of this….I don’t know how much more I can take. > > Ann
Response:
Asacol, pentasa, and all 5-asa meds can seriously damage kidnetys. Fortunately, if caught early, the damage is reversable. Good luck, Mike — To reply via email remove the X’s from my email address:
– Hide quoted text — Show quoted text -> Hi all, > My Doctor called me at home and at work and e-mailed me the other day to > tell me that I needed to get a GP, because my bloodwork is showing that > there are now some issues with my kidneys. A couple of weeks ago, she told > me that my hemoglobin is really low and that I have an increase in white > cells. Now my blood work shows that my glomerular filtration rate (GFR) is > too low and they are concerned about my kidney function. My GFR was 56. > Should I be concerned? Should I be really worried? I have been having some > lower back pain, but no pain during urination or anything. I am on > prednisone and Imuran, could these meds be causing this? I am getting so > tired of this….I don’t know how much more I can take. > > Ann
Response:
- Hide quoted text — Show quoted text – > Hi all, > My Doctor called me at home and at work and e-mailed me the other day to > tell me that I needed to get a GP, because my bloodwork is showing that > there are now some issues with my kidneys. A couple of weeks ago, she told > me that my hemoglobin is really low and that I have an increase in white > cells. Now my blood work shows that my glomerular filtration rate (GFR) is > too low and they are concerned about my kidney function. My GFR was 56. > Should I be concerned? Should I be really worried? I have been having some > lower back pain, but no pain during urination or anything. I am on > prednisone and Imuran, could these meds be causing this? I am getting so > tired of this….I don’t know how much more I can take. > > Ann
hi ann get into the er ….i had the same thing…i was on pred..and i had lower back pain..i waited thinking it was just a pulled muscle(even tho it was on both sides)..then one night i started running a high (for me) fever..over 103..and my teeth didnt stop chattering..so i went to the doctor the next day and he put me right in the hospital and they did a scan of the kidneys.. both were badly infected..i needed iv antibiotics..i was in a couple of days..then sent home with more antibiotics..they said it was the prednisone…it lowers the body’s ability to fight off normal bacteria that get into your system…i was fortunate to NOT have permanent kidney damage.. now i know what the signs are..i wouldnt wait as long as i did…that fever and teeth chattering bit..i was shivering and shaking but i didnt feel cold..they told me in the er that was a classic symptom of serious kidney infection… i dont know if imuran(i am on 6mp now..i wasnt then) will do anything…but pred surely will…i wont take it anymore..i hope never to take it anymore..that kidney infection scared the life outta me..i also had no pain urinating and no visible blood in the urine..i had NO idea what was wrong til the doctor did a urine and blood test and told me… good luck and take care.. annie
Response:
Hi all, My Doctor called me at home and at work and e-mailed me the other day to tell me that I needed to get a GP, because my bloodwork is showing that there are now some issues with my kidneys. A couple of weeks ago, she told me that my hemoglobin is really low and that I have an increase in white cells. Now my blood work shows that my glomerular filtration rate (GFR) is too low and they are concerned about my kidney function. My GFR was 56. Should I be concerned? Should I be really worried? I have been having some lower back pain, but no pain during urination or anything. I am on prednisone and Imuran, could these meds be causing this? I am getting so tired of this….I don’t know how much more I can take. Ann
Response:
absolutely, those meds can be causing this. you may be able to switch some meds, that might help. also, some limits, not sure of this one tho, are not really all that hi, or lo. for example, my liver enzimes are at or just above the "hi limit", however my doc would not do much unless it got about 3 times that. go figure! best to get it checked out. i don’t know what "doc" called you, but whomever has you on meds should be looking after you. is it your gi? jeff
– Hide quoted text — Show quoted text -> Hi all, > My Doctor called me at home and at work and e-mailed me the other day to > tell me that I needed to get a GP, because my bloodwork is showing that > there are now some issues with my kidneys. A couple of weeks ago, she told > me that my hemoglobin is really low and that I have an increase in white > cells. Now my blood work shows that my glomerular filtration rate (GFR) is > too low and they are concerned about my kidney function. My GFR was 56. > Should I be concerned? Should I be really worried? I have been having some > lower back pain, but no pain during urination or anything. I am on > prednisone and Imuran, could these meds be causing this? I am getting so > tired of this….I don’t know how much more I can take. > > Ann
Response:
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