Ha Ha, you can all giggle at my bowel prep…..
Question:
Wow you bring a shopping list to take care of! 
Just make sure your doc writes it all down. My surgeon has specific orders from me and my husband about not making adhesions a problem because of stitching quality. He did small this time he says, of course I haven’t seen inside yet so I won’t know until it’s healed and a flare or routine tests is required so that I can see. Not pushing either of these options though! UM MOM Susan
– Hide quoted text — Show quoted text -> Many thanks Sdores and to everyone else. > I will be back in a couple of weeks with a blow by blow account. I would > love to be awake through it and watch, but I suspect that one finds it to > concentrate and give advice with one’s intestines strung all over the > operating theatre. > I just want to make sure that they do a complete adhesiolysis, locate the > endometriosis and remove, refashion my ileostomy properly and take out my > gall bladder (2 cm gallstone) whilst there are there. > All the best, > Vanny > Vanny good luck with your surgery. You are always such a great help and > support here. UM MOM Susan > Nina, > Sorry to hear that you are possibly going to be faced with the decision. > I > made the decision in 1992, but had to wait until 1993 for the operation > (ileostomy). I had seen the x-rays of my colon (Crohn’s) and realised > that > there was no way that the damage would be reversed. The operation saved > my > life and gave me back my quality of life. I am no way 100% and am going > for > my 2nd stoma refashioning, complete intestinal adhesiolysis and removal > of > endometriosis (on my intestine?) next week. However, I would have been > dead > if I had not had the operation. > Do a search on www.talkaboutsupport.com, there will be some posts there > that > will help you. > All the best, > Vanny > HI, > This is for everyone who curses the medical people who give you bowel > preps to take and then do uncomfortable exams on you when you feel like > crap! > I go for my first colonoscopy this Friday since being diagnosed just > over a year ago. (I have had sigmoidoscopies, no prep…) I get to do > "Go Litely" on Thursday. I am nervous about this, I recall very well > how unwell people respond to bowel preps (from my days of doing barium > enemas at work). I also fear the gas pains after the scope, I think > morphine will do….. > The worst part of this I can’t decide on. Is it missing another of my > daughter’s birthday’s to this illness (the scope is on her birthday and > I was in hospital last year. She is turning 3.) or is it that I may > face colectomy depending on the results? I know that if there is a > significant stricture that my GE will recommend surgery, given the > severity of my disease and that we can’t get me off pred or in > remission (yet?). > So, there it is. My fate will be decided and when I return to work I > can honestly say to my patients when they ask "yes, I have done a bowel > prep before!". (I still haven’t had to drink barium though!) > Nina > P.S. for those of you who aren’t sure, I’m scared poopless of the > outcome. I don’t know if I’m ready to make any major decisions. I also > don’t know if I want to continue being this sick either….
Response:
Many thanks Sdores and to everyone else. I will be back in a couple of weeks with a blow by blow account. I would love to be awake through it and watch, but I suspect that one finds it to concentrate and give advice with one’s intestines strung all over the operating theatre. I just want to make sure that they do a complete adhesiolysis, locate the endometriosis and remove, refashion my ileostomy properly and take out my gall bladder (2 cm gallstone) whilst there are there. All the best, Vanny Vanny good luck with your surgery. You are always such a great help and support here. UM MOM Susan
– Hide quoted text — Show quoted text -> Nina, > Sorry to hear that you are possibly going to be faced with the decision. I > made the decision in 1992, but had to wait until 1993 for the operation > (ileostomy). I had seen the x-rays of my colon (Crohn’s) and realised that > there was no way that the damage would be reversed. The operation saved my > life and gave me back my quality of life. I am no way 100% and am going > for > my 2nd stoma refashioning, complete intestinal adhesiolysis and removal of > endometriosis (on my intestine?) next week. However, I would have been > dead > if I had not had the operation. > Do a search on www.talkaboutsupport.com, there will be some posts there > that > will help you. > All the best, > Vanny > HI, > This is for everyone who curses the medical people who give you bowel > preps to take and then do uncomfortable exams on you when you feel like > crap! > I go for my first colonoscopy this Friday since being diagnosed just > over a year ago. (I have had sigmoidoscopies, no prep…) I get to do > "Go Litely" on Thursday. I am nervous about this, I recall very well > how unwell people respond to bowel preps (from my days of doing barium > enemas at work). I also fear the gas pains after the scope, I think > morphine will do….. > The worst part of this I can’t decide on. Is it missing another of my > daughter’s birthday’s to this illness (the scope is on her birthday and > I was in hospital last year. She is turning 3.) or is it that I may > face colectomy depending on the results? I know that if there is a > significant stricture that my GE will recommend surgery, given the > severity of my disease and that we can’t get me off pred or in > remission (yet?). > So, there it is. My fate will be decided and when I return to work I > can honestly say to my patients when they ask "yes, I have done a bowel > prep before!". (I still haven’t had to drink barium though!) > Nina > P.S. for those of you who aren’t sure, I’m scared poopless of the > outcome. I don’t know if I’m ready to make any major decisions. I also > don’t know if I want to continue being this sick either….
Response:
Hi Nina, That’s great. You can now know what’s been going on. Hope you had a great birthday with you daughter, too. Nina – Hide quoted text — Show quoted text – > Thanks Nina, it did go O.K. > Dr Halparin took amazing care of me! He did find a stricture, part scar > tissue and part inflammation. He’s not worried about it yet, it’s still > somewhat small. My sigmoid is still very active with disease but the > rest of my colon is starting to respond to the meds. He’s still > optimistic I can keep my colon. In the meantime I can add steroid > enemas to the plan. > Thanks for asking! (I can’t say that I enjoyed the prep or > procedure,but I like having answers. > Nina
Response:
The party was amazing, it really made up for missing last year! I feel like "crap" physically but I am very contented with things. (birthday, colonoscopy results etc). Have a great Valentine’s Day! Nina
Response:
Thanks Nina, it did go O.K. Dr Halparin took amazing care of me! He did find a stricture, part scar tissue and part inflammation. He’s not worried about it yet, it’s still somewhat small. My sigmoid is still very active with disease but the rest of my colon is starting to respond to the meds. He’s still optimistic I can keep my colon. In the meantime I can add steroid enemas to the plan. Thanks for asking! (I can’t say that I enjoyed the prep or procedure,but I like having answers. Nina
Response:
Hi Nina, Hope everything went well with your colonoscopy. I’m sure Dr. Halparin took really good care of you. I’ve been off line for awhile. Let us know, how it went. Keep on smilin, Nina K. – Hide quoted text — Show quoted text – > HI, > This is for everyone who curses the medical people who give you bowel > preps to take and then do uncomfortable exams on you when you feel like > crap! > I go for my first colonoscopy this Friday since being diagnosed just > over a year ago. (I have had sigmoidoscopies, no prep…) I get to do > "Go Litely" on Thursday. I am nervous about this, I recall very well > how unwell people respond to bowel preps (from my days of doing barium > enemas at work). I also fear the gas pains after the scope, I think > morphine will do….. > The worst part of this I can’t decide on. Is it missing another of my > daughter’s birthday’s to this illness (the scope is on her birthday and > I was in hospital last year. She is turning 3.) or is it that I may > face colectomy depending on the results? I know that if there is a > significant stricture that my GE will recommend surgery, given the > severity of my disease and that we can’t get me off pred or in > remission (yet?). > So, there it is. My fate will be decided and when I return to work I > can honestly say to my patients when they ask "yes, I have done a bowel > prep before!". (I still haven’t had to drink barium though!) > Nina > P.S. for those of you who aren’t sure, I’m scared poopless of the > outcome. I don’t know if I’m ready to make any major decisions. I also > don’t know if I want to continue being this sick either….
Response:
well nina..first you are in my prayers…dont be too nervous about the procedure..its much improved over the way they used to do them(4 days of fasting..horrendous stuff to drink..enemas etc etc..)..and the versed i find is way better than demerol or whatever they used to use…valium or something.. i have never had pains after the scope at all..in fact i would prefer a colonoscopy to a sigmoid..those have been horrid for me..with gas pain during and after…the colonoscopy i have enough pain med to be ok… re the colectomy…that will be a very tough decision and one that u should get at least 2 opinions on(professional opinions i mean)…i was kind of faced with that a long time ago..when i finally decided "yes’…i was told it was no longer simply ulcerative colitis but "crohns" or "crohns colitis" and they dont like to do colectomies for that.. so that door was closed and i live with the day to day ibd issues that many of us on the board have as for barium…been there and done that and it does NOT taste like a strawberry frappe or anything edible or potable…it tasted sort of like chalk…but thats not what got to me…i didnt realize they swing you up on that platform u are standing on..i have a problem with heights and motion..and i nearly barfed up the barium cos i felt so sick and surprised when they swung the thing around…lol… i wouldnt have a colectomy because you have missed your child’s b day…its something that can affect the rest of your life…if you have uc its the ultimate cure..but be sure u have ONLY uc…crohns can spread…my supposed uc spread all over my colon in patches…leading them to change my dx and the options… my kids grew up with my having ibd and finally i have had to stop working as welll(since 1996)…my husband took off(he doesnt like "sick people’) and i am remarried happily to someone who doesnt see me as either an object of pity or derision…he simply loves me…my life has been really good the last few years in spite of the ibd….my kids got used to "mummy being in the hospital" or "mummy being in bed sick"…if i couldnt do something one day..i did it on the next day….they seem to appreciate their childhoods now(they are 26 and 27)…and tell me they were really happy and often talk about good stuff we did…i dont feel i missed out on too much…i did miss out on what it would feel like to NOT have that tummy pain, that diarrhea, that nausea…that pred…etc etc…ever again…and i do miss my job…(counseling and teaching) but hope to do some volunteer work maybe in a few months… just be sure its definitely uc if u go for the surgery…and uc thats in one place…not in patches…. take care..love annie
Response:
Vanny good luck with your surgery. You are always such a great help and support here. UM MOM Susan
– Hide quoted text — Show quoted text -> Nina, > Sorry to hear that you are possibly going to be faced with the decision. I > made the decision in 1992, but had to wait until 1993 for the operation > (ileostomy). I had seen the x-rays of my colon (Crohn’s) and realised that > there was no way that the damage would be reversed. The operation saved my > life and gave me back my quality of life. I am no way 100% and am going > for > my 2nd stoma refashioning, complete intestinal adhesiolysis and removal of > endometriosis (on my intestine?) next week. However, I would have been > dead > if I had not had the operation. > Do a search on www.talkaboutsupport.com, there will be some posts there > that > will help you. > All the best, > Vanny > HI, > This is for everyone who curses the medical people who give you bowel > preps to take and then do uncomfortable exams on you when you feel like > crap! > I go for my first colonoscopy this Friday since being diagnosed just > over a year ago. (I have had sigmoidoscopies, no prep…) I get to do > "Go Litely" on Thursday. I am nervous about this, I recall very well > how unwell people respond to bowel preps (from my days of doing barium > enemas at work). I also fear the gas pains after the scope, I think > morphine will do….. > The worst part of this I can’t decide on. Is it missing another of my > daughter’s birthday’s to this illness (the scope is on her birthday and > I was in hospital last year. She is turning 3.) or is it that I may > face colectomy depending on the results? I know that if there is a > significant stricture that my GE will recommend surgery, given the > severity of my disease and that we can’t get me off pred or in > remission (yet?). > So, there it is. My fate will be decided and when I return to work I > can honestly say to my patients when they ask "yes, I have done a bowel > prep before!". (I still haven’t had to drink barium though!) > Nina > P.S. for those of you who aren’t sure, I’m scared poopless of the > outcome. I don’t know if I’m ready to make any major decisions. I also > don’t know if I want to continue being this sick either….
Response:
Thanks Susan, you are a pillar of support throught the electrons of the internet. I will keep everyone posted, and I will ask about the other preps! Nina
Response:
Nina, Sorry to hear that you are possibly going to be faced with the decision. I made the decision in 1992, but had to wait until 1993 for the operation (ileostomy). I had seen the x-rays of my colon (Crohn’s) and realised that there was no way that the damage would be reversed. The operation saved my life and gave me back my quality of life. I am no way 100% and am going for my 2nd stoma refashioning, complete intestinal adhesiolysis and removal of endometriosis (on my intestine?) next week. However, I would have been dead if I had not had the operation. Do a search on www.talkaboutsupport.com, there will be some posts there that will help you. All the best, Vanny HI, This is for everyone who curses the medical people who give you bowel preps to take and then do uncomfortable exams on you when you feel like crap! I go for my first colonoscopy this Friday since being diagnosed just over a year ago. (I have had sigmoidoscopies, no prep…) I get to do "Go Litely" on Thursday. I am nervous about this, I recall very well how unwell people respond to bowel preps (from my days of doing barium enemas at work). I also fear the gas pains after the scope, I think morphine will do….. The worst part of this I can’t decide on. Is it missing another of my daughter’s birthday’s to this illness (the scope is on her birthday and I was in hospital last year. She is turning 3.) or is it that I may face colectomy depending on the results? I know that if there is a significant stricture that my GE will recommend surgery, given the severity of my disease and that we can’t get me off pred or in remission (yet?). So, there it is. My fate will be decided and when I return to work I can honestly say to my patients when they ask "yes, I have done a bowel prep before!". (I still haven’t had to drink barium though!) Nina P.S. for those of you who aren’t sure, I’m scared poopless of the outcome. I don’t know if I’m ready to make any major decisions. I also don’t know if I want to continue being this sick either….
Response:
Nina I totally understand all these fears you are having. It is normal too. If your dr will allow I would recommend the Visacol tabs for prep or even the citrus of magnesium over the golytely. That stuff in my opinion is the nastiest and you have so much to drink. The pills though are my preference. If surgery gets in the picture for you, you will know if and when it is the right time. I have now had three, two major surgeries and one minor from my crohn’s. (Trying to heal now from surgery two weeks ago for the hernia) I wish you the best my friend and hope things turn out the way you want them to. Please let us know how it goes. If you need or want someone to talk to feel free to email me. UM MOM Susan
– Hide quoted text — Show quoted text -> HI, > This is for everyone who curses the medical people who give you bowel > preps to take and then do uncomfortable exams on you when you feel like > crap! > I go for my first colonoscopy this Friday since being diagnosed just > over a year ago. (I have had sigmoidoscopies, no prep…) I get to do > "Go Litely" on Thursday. I am nervous about this, I recall very well > how unwell people respond to bowel preps (from my days of doing barium > enemas at work). I also fear the gas pains after the scope, I think > morphine will do….. > The worst part of this I can’t decide on. Is it missing another of my > daughter’s birthday’s to this illness (the scope is on her birthday and > I was in hospital last year. She is turning 3.) or is it that I may > face colectomy depending on the results? I know that if there is a > significant stricture that my GE will recommend surgery, given the > severity of my disease and that we can’t get me off pred or in > remission (yet?). > So, there it is. My fate will be decided and when I return to work I > can honestly say to my patients when they ask "yes, I have done a bowel > prep before!". (I still haven’t had to drink barium though!) > Nina > P.S. for those of you who aren’t sure, I’m scared poopless of the > outcome. I don’t know if I’m ready to make any major decisions. I also > don’t know if I want to continue being this sick either….
Response:
HI, This is for everyone who curses the medical people who give you bowel preps to take and then do uncomfortable exams on you when you feel like crap! I go for my first colonoscopy this Friday since being diagnosed just over a year ago. (I have had sigmoidoscopies, no prep…) I get to do "Go Litely" on Thursday. I am nervous about this, I recall very well how unwell people respond to bowel preps (from my days of doing barium enemas at work). I also fear the gas pains after the scope, I think morphine will do….. The worst part of this I can’t decide on. Is it missing another of my daughter’s birthday’s to this illness (the scope is on her birthday and I was in hospital last year. She is turning 3.) or is it that I may face colectomy depending on the results? I know that if there is a significant stricture that my GE will recommend surgery, given the severity of my disease and that we can’t get me off pred or in remission (yet?). So, there it is. My fate will be decided and when I return to work I can honestly say to my patients when they ask "yes, I have done a bowel prep before!". (I still haven’t had to drink barium though!) Nina P.S. for those of you who aren’t sure, I’m scared poopless of the outcome. I don’t know if I’m ready to make any major decisions. I also don’t know if I want to continue being this sick either….
Response:
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