IBD or IBS Concern, looking for advice..

Question:

Hi, My family Dr told me of one of her patients who went years having a scope every year, all negative. Finally, on the last one they found ulcerative colitis. Frustrating for person and Dr to say the least! My case was straight forward, but I also started out as severe as you can get. (I have severe UC) Your symptoms sound very similar to mine, especially the blood piggybacking the BM. Hang in there and ask to see a gastroenterologist, NOT an internist or any other surgeon who also does scopes. It seems that everyone I know who gets their scopes (sigmoid/colon) done by an internist has diagnosis problems. Have any other tests been done? Ct scans, ultrasound? Insist on anything that even may give an answer. Best wishes and I hope for a "mild" and speady diagnosis. NinaW

Response:

Paul, Just remember, when pain inhibits your ability to function controlling that pain becomes the only way to regain your quality of life and your sanity. Trust me, I’ve been there. In the end, I opted for surgery but that is not always an option, especially with Crohn’s Disease. mgbio – Hide quoted text — Show quoted text ->You sound like you are having a terrible time. While they are trying to >diagnose the real problem they should get the pain control people >involved. My pain team consisted of two anesthesiologists and a >psychiatrist. they combined conventional and sustained release >narcotics which take care of the pain and dexedrine which gets rid of >the groggy effect, It has been a real blessing, May you find both >comfort and the cause of your problem. >Good luck – Paul > Paul, > My thanks for your advice. However when it comes to pain control, I feel it > is a slippery slope that I do not like to cross. Everyone is different of > course, but for myself I have a belief that the more pain medication you are > taking to deal with a condition, the more dependent you get, and start > inching to a "point of no return". > I have had some strong pain meds sitting around the house the last few > months, prescribed when I went to the ER (Percocet, etc.), but have yet to > take any. Have come close, but don’t want to cross that imaginary line in my > head. > But again, everyone is different, have different levels of pain, and pain > thresholds, etc. > Paul

Response:

Guess we’ll see if I am in the "club"…. Paul Paul, I hope you do not become a card carrying member of this "club". However, I do hope you get answers. Compared with a lot of the people on this board, I was lucky and diagnosed within 2 months of my first "flare" of disease (I have moderate to severe Ulcerative Colitis). That was about 1 1/2 years and 3 meds ago. I am much better, but am struggling still with symptoms. Mostly peripheral pain in you lower back joints and legs and fatigue seems to be a big problem too. I am 34 and was is in excellent health until the UC struck. The only major health issues I had before than was 2 pregnancies. I can relate to the fear you are feeling. It is also frustrating when you know something is really wrong and can’t get a diagnoses. I wish you the best of luck and please let us know how things go. If you do join our club, you’ll find a good bunch of people here. Dianna

Response:

My post is to Sturmtiger, and not to you all. Just because something is right for Paul Hinman doesn’t make it right for everyone he speaks to. This applies to you too. I did not see anywhere in Paul’s post that said this is the best way and none is better. He was stating what has worked for him and might help someone else. It is not the fact that you are offering another opinion or counter opinion. It is the way in which you do it. You can offer a different opinion without attacking someone else. Your comments on Paul Hinman, whether they were in reference to his recent post or a past posts were uncalled for. If you don’t want a bunch of heated responses to your posts, then quit dragging other on this board through the mud. Dianna

Response:

One other thing, did you get bloods taken? This can say a lot too about what might be going on, inflammation for example. Colon cancer got ruled out with me first by blood tests and then scope and biopsies. You also say your dr said the blood is from higher up which I would think is probably from inflammation and maybe with the skinny and small stools, a stricture or a partial blockage may be there. I would suggest you ask for a pediatric scope tool for the scope as it is easier to get through if there is any strictures plus with you wanting to be awake, it won’t hurt as bad. I had one scope awake and that was one too many in my opinion but I have a real low threshold on pain too. I wish you the best and will be hoping that it is nothing serious. Good luck and again please do let us know how it goes. UM MOM Susan

– Hide quoted text — Show quoted text -> I’ve got similar problems, as everyone does who has GI issues since all > the conditions seem to share general symptoms. I share your problem with > sedation and it’s nice to see others able to go through the scopes > without being drugged. > Getting scoped unsedated is certainly uncomfortable without a doubt, but > preferable to being drugged up. > The bleeding could easily just be from your hemorrhoids. > Actually had thought that, but the doc said the bleeding is coming from > further up. Maybe it is a hemorrhoid further up from the colon? Have no > idea. Did want to mention however that I have had no bleeding the last 6 > days, but still a lot of intense pain and discomfort. > The stool becoming smaller is one of the things I’ve not been able to > figure out. Is it just skinnier? > Yep, it’s skinnier, and very soft, almost diarrhea like but still retaining > solidity. It also is shorter at times/ > If it’s skinnier maybe it’s > from a narrowing, maybe caused by inflammation? > Sounds possible and along the lines of what I had been thinking. Only > question is, what is causing the inflammation? Will (hopefully) find out > next week. > If it’s shorter, maybe > it’s simply due to a nervous sphincter that’s pulsing rather than > relaxing and acting like a guillotine. > When it is shorter, that is what I was thinking. When all of this started > three months back, I started to dread going to the bathroom. Because of > that, mentally I have begun to try and hold it, and once I start want to > stop quickly. > I can’t wait until next week to hear about the colonoscopy results. If > you find anything out about what causes the stool to become smaller > please let me know. > Sure thing. Will post an update here once I know the results. The Doc is one > of the best GI guys in the country, and is the GI teacher at the University > of Arizona, has also done a lot of work overseas in third world countries, > so I believe if anyone can pinpoint it, it would be him. > BTW, because they cannot afford anasthesia in most parts of Africa, when I > went in for my Endoscopy without sedation, they jokingly said they had a > name for it, "So, you want to do it Mozambique style":) > If it were colon cancer, I’d be inclined to expect something different > from your story, like losing weight and feeling weaker, etc. > Agreed. This does seem to be the least likely culprit. If for no other > reason I have no family history, am only 32, and had a clean colonoscopy 5 > years ago. > Diverticulitis might make more sense. This would also help explain the > hemorrhoids, but you didn’t mention a history of constipation. > Oh, there is constipation. Part of it is due to the fact I feel backed up > all the time, and the stools are not fully formed (as above). However I > believe since this all started part of it is psychological, with the fear of > going to the bathroom and having blood, etc. > Diverticulitis does make the most sense out of the three possibilities, and > probably would be my preference if I had a choice (had a friend who had it, > he had surgery, now he is much better). > Don’t worry about this Paul Hinman guy, almost all of his posts involve > something about recommending people drug themselves up to forget their > pain. Apparently he is psychologically unable to deal with real life and > uses meds just as a junkie uses illegal drugs. > I will have to remain neutral here. Don’t know the guy so I can’t comment. > However with that said, will state that I do not agree with his approach > personally, but again as I said in my reply to him, everyone is different. > Just don’t want a classic abusenet flamewar on my first post to the group:) > You demonstrate the ability to cope with difficult situations. Most of > the people here told me that a colonoscopy without sedation would be > living hell, but you’ve managed. You’re clearly a strong person and you > are probably very close to finally having some answers. > Take care > Brad, > I appreciate your kind words and encouragement. My thanks. Will definitely > be on the group until this is resolved one way or another, and if it is IBD, > will be here long after. > Thanks, > Paul

Response:

> i think you keep exploring and go to a doc, which maybe you finally have > found one, that will keep looking and find the issue. it is not normal what > is happening, there is an issue and you doc needs to be pushed to find it. > jeff

Jeff, Am on that path. I just hope it doesn’t take years and dozens of inconclusive tests & invasive procedures to find it like many here seem to have gone through. Paul

Response:

Hi Paul, I hope this is a club you can pass on! :) I have crohn’s and two surgeries now. It took me almost two years and emergency exploratory surgery with a resection to get diagnosed so don’t give up and keep trying to find out what is going on. If you are bleeding and it isn’t from hemorrhoids then I can tell you it’s not IBS. I got that stamped on my forehead and didn’t know any better. I had never heard of IBD before surgery and the diagnosis. My crohn’s has yet to show itself in tests until it’s too late and the damage is too far along. You didn’t say whether you are having trouble with weight staying on but if you are try to keep the weight up with supplement drinks and eating small meals multiple times a day. I was 74 pounds for my first surgery and wouldn’t recommend this to anyone. I lost over 60 pounds in a short period of time. Good luck with your scope and please let us know how it goes. Also, I agree with others that you should not have to live with pain so talk to your dr about it. UM MOM Susan

– Hide quoted text — Show quoted text -> Hi Paul, > It sounds like you are long overdue for a colonoscopy >to see what is > going on with the lower end of your GI >tract. If nothing is found, which > is a possibility, then the >next step would be for an upper GI with small > bowel >follow through and/or a CT Scan with IV contrast. >Those tests will > allow your GI to see what is happening >in the area where the scopes can not > reach, esp. your >ileum, an area where if you have CD, a problem is, most >likely to exist. > Had been reading up on that recently. Had talked to my PCP about an upper GI > follow up if the colonoscopy is negative. > IBD is very difficult to exist and often, a proper >diagnosis takes years. > Hopefully this is not what you >have, but at this point it needs to be ruled > out. Good >luck! > mgbio > I truly hope it doesn’t take years. Just the last few months I have been on > the razors edge, I cannot see having to deal with this over a period of > years. However for those that do have confirmed IBD, you have my sincere > respect. Just going through this in the short amount of time I have had > symptoms has been hell, having to deal with it your entire life? Guess we’ll > see if I am in the "club"…. > Paul

Response:

> You sound like you are having a terrible time. While they are trying to > diagnose the real problem they should get the pain control people > involved. My pain team consisted of two anesthesiologists and a > psychiatrist. they combined conventional and sustained release > narcotics which take care of the pain and dexedrine which gets rid of > the groggy effect, It has been a real blessing, May you find both > comfort and the cause of your problem. > Good luck – Paul

Paul, My thanks for your advice. However when it comes to pain control, I feel it is a slippery slope that I do not like to cross. Everyone is different of course, but for myself I have a belief that the more pain medication you are taking to deal with a condition, the more dependent you get, and start inching to a "point of no return". I have had some strong pain meds sitting around the house the last few months, prescribed when I went to the ER (Percocet, etc.), but have yet to take any. Have come close, but don’t want to cross that imaginary line in my head. But again, everyone is different, have different levels of pain, and pain thresholds, etc. Paul

Response:

> I’ve got similar problems, as everyone does who has GI issues since all > the conditions seem to share general symptoms. I share your problem with > sedation and it’s nice to see others able to go through the scopes > without being drugged.

Getting scoped unsedated is certainly uncomfortable without a doubt, but preferable to being drugged up. > The bleeding could easily just be from your hemorrhoids.

Actually had thought that, but the doc said the bleeding is coming from further up. Maybe it is a hemorrhoid further up from the colon? Have no idea. Did want to mention however that I have had no bleeding the last 6 days, but still a lot of intense pain and discomfort. > The stool becoming smaller is one of the things I’ve not been able to > figure out. Is it just skinnier?

Yep, it’s skinnier, and very soft, almost diarrhea like but still retaining solidity. It also is shorter at times/ If it’s skinnier maybe it’s > from a narrowing, maybe caused by inflammation?

Sounds possible and along the lines of what I had been thinking. Only question is, what is causing the inflammation? Will (hopefully) find out next week. If it’s shorter, maybe > it’s simply due to a nervous sphincter that’s pulsing rather than > relaxing and acting like a guillotine.

When it is shorter, that is what I was thinking. When all of this started three months back, I started to dread going to the bathroom. Because of that, mentally I have begun to try and hold it, and once I start want to stop quickly. > I can’t wait until next week to hear about the colonoscopy results. If > you find anything out about what causes the stool to become smaller > please let me know.

Sure thing. Will post an update here once I know the results. The Doc is one of the best GI guys in the country, and is the GI teacher at the University of Arizona, has also done a lot of work overseas in third world countries, so I believe if anyone can pinpoint it, it would be him. BTW, because they cannot afford anasthesia in most parts of Africa, when I went in for my Endoscopy without sedation, they jokingly said they had a name for it, "So, you want to do it Mozambique style":) > If it were colon cancer, I’d be inclined to expect something different > from your story, like losing weight and feeling weaker, etc.

Agreed. This does seem to be the least likely culprit. If for no other reason I have no family history, am only 32, and had a clean colonoscopy 5 years ago. > Diverticulitis might make more sense. This would also help explain the > hemorrhoids, but you didn’t mention a history of constipation.

Oh, there is constipation. Part of it is due to the fact I feel backed up all the time, and the stools are not fully formed (as above). However I believe since this all started part of it is psychological, with the fear of going to the bathroom and having blood, etc. Diverticulitis does make the most sense out of the three possibilities, and probably would be my preference if I had a choice (had a friend who had it, he had surgery, now he is much better). > Don’t worry about this Paul Hinman guy, almost all of his posts involve > something about recommending people drug themselves up to forget their > pain. Apparently he is psychologically unable to deal with real life and > uses meds just as a junkie uses illegal drugs.

I will have to remain neutral here. Don’t know the guy so I can’t comment. However with that said, will state that I do not agree with his approach personally, but again as I said in my reply to him, everyone is different. Just don’t want a classic abusenet flamewar on my first post to the group:) > You demonstrate the ability to cope with difficult situations. Most of > the people here told me that a colonoscopy without sedation would be > living hell, but you’ve managed. You’re clearly a strong person and you > are probably very close to finally having some answers. > Take care

Brad, I appreciate your kind words and encouragement. My thanks. Will definitely be on the group until this is resolved one way or another, and if it is IBD, will be here long after. Thanks, Paul

Response:

Scientologist?

Response:

> Hi Paul, > It sounds like you are long overdue for a colonoscopy >to see what is

going on with the lower end of your GI >tract. If nothing is found, which is a possibility, then the >next step would be for an upper GI with small bowel >follow through and/or a CT Scan with IV contrast. >Those tests will allow your GI to see what is happening >in the area where the scopes can not reach, esp. your >ileum, an area where if you have CD, a problem is, most >likely to exist.

Had been reading up on that recently. Had talked to my PCP about an upper GI follow up if the colonoscopy is negative. > IBD is very difficult to exist and often, a proper >diagnosis takes years.

Hopefully this is not what you >have, but at this point it needs to be ruled out. Good >luck! > mgbio

I truly hope it doesn’t take years. Just the last few months I have been on the razors edge, I cannot see having to deal with this over a period of years. However for those that do have confirmed IBD, you have my sincere respect. Just going through this in the short amount of time I have had symptoms has been hell, having to deal with it your entire life? Guess we’ll see if I am in the "club"…. Paul

Response:

> "While they are trying to diagnose the real problem they should get > the pain control people involved." – Pail Hinman

There is no reason to suffer unneccessarily yet many people have indicated that their current physician tends to ignore that part of treating a patient > My post is to Sturmtiger, and not to you all. Just because something > is right for Paul Hinman doesn’t make it right for everyone he speaks to.

part of the benefit of the news group is the sharing that goes on. Most of us will continue to read posts that were not directly addressed to us. > I have no problem with his personal pain control, but just as I will > allow him to advise others that they should use pain control and > psychiatric medications, I expect the same courtesy when I tell the > person he just advised that Paul recommends it a lot and it wasn’t > something tailored specifically for the person he was writing to.

If you are prepared to allow me to reccommend pain control and anti-depressents then why is it so important that you warn others of my apparent passion for these drugs. Of course drugs that weren’t prescribed for others were not tailored for them. But if the person talks to their doctor about these medications they will be tailored for that person, noone expects a tailored treatment plan from a fellow news group member. > People trust advice they receive over the Internet too readily, and > when I see someone pushing one agenda, I sometimes feel the need to > provide a counter balance.

I can think of several things that I would like to warn others about but I have no experience in those areas so I say nothing. > Paul does in fact quickly jump to push the anti-pain approach using > medications. In this situation, for a man who has anxiety from being > sedated and who is strong enough to undergo diagnostic scopes without > being knocked out, such a recommendation not only doesn’t make sense, > but it is reckless

I have been scoped without medication/sedation and I doubt that I ever will. Over last 21 years I would expect that I have had 50 or so scopes and never even one without medication. Where did you get the idea that I take my scopes sober? > As for the second part of my paragraph where I compare Paul Hinman to > a junkie, it is in reference not to this recent post, but the fact > that he advised someone previously to ask for an antidepressant, which > he apparently takes. > "While she is at it you should ask her for an antidepressent, I don’t > know how I would get along without mine." – Paul Hinman

If taking an anti-depressent is all that it takes to be a junkie, the streets would be crawling with them > Again, I have nothing against Paul Hinman or his choices. In his > situation it might’ve been the right thing. My voice only comes in > once he starts recommending things that were right for him, to just > about everyone else he speaks to. I will speak up whenever I see this, > regardless of whether its advice about medicine, or the benign and > positive nature of colectomy surgery. To top it off, I don’t want Paul > to stop recommending pain control through medicine. He should offer > his experience and his advice, and everyone should allow me the same.

Everyone has the right to spread recommendations on those things that have worked for them but dismiss a fellow news group member as psycological cripple and a junkie with a fixation on prescription drugs is neither fair, accurate, nor even polite. >> Don’t worry about this Paul Hinman guy, almost all of his posts involve >> something about recommending people drug themselves up to forget their >> pain. Apparently he is psychologically unable to deal with real life >> and >> uses meds just as a junkie uses illegal drugs.

If you believe this be on the lookout for my comments gastric reflux and As I go through the approval for BOTOX pain relief I will keep the ng posted. Ther have been several postings regarding cancerous growths in my esophagus,

Response:

amen!!! jeff – Hide quoted text — Show quoted text -> Don’t worry about this Paul Hinman guy, almost all of his posts involve > something about recommending people drug themselves up to forget their > pain. Apparently he is psychologically unable to deal with real life and > uses meds just as a junkie uses illegal drugs. > Maybe you need to leave Paul Hinman alone. You don’t know him and you > really have no idea what he has gone through. > This group is supposed to offer help and support to each other. Not > criticism and ridicule. Dealing with Crohn’s and UC is hard enough without > being hammered into the ground for it. > Dianna

Response:

"While they are trying to diagnose the real problem they should get the pain control people involved." – Pail Hinman My post is to Sturmtiger, and not to you all. Just because something is right for Paul Hinman doesn’t make it right for everyone he speaks to. I have no problem with his personal pain control, but just as I will allow him to advise others that they should use pain control and psychiatric medications, I expect the same courtesy when I tell the person he just advised that Paul recommends it a lot and it wasn’t something tailored specifically for the person he was writing to. People trust advice they receive over the Internet too readily, and when I see someone pushing one agenda, I sometimes feel the need to provide a counter balance. Paul does in fact quickly jump to push the anti-pain approach using medications. In this situation, for a man who has anxiety from being sedated and who is strong enough to undergo diagnostic scopes without being knocked out, such a recommendation not only doesn’t make sense, but it is reckless. As for the second part of my paragraph where I compare Paul Hinman to a junkie, it is in reference not to this recent post, but the fact that he advised someone previously to ask for an antidepressant, which he apparently takes. "While she is at it you should ask her for an antidepressent, I don’t know how I would get along without mine." – Paul Hinman Again, I have nothing against Paul Hinman or his choices. In his situation it might’ve been the right thing. My voice only comes in once he starts recommending things that were right for him, to just about everyone else he speaks to. I will speak up whenever I see this, regardless of whether its advice about medicine, or the benign and positive nature of colectomy surgery. To top it off, I don’t want Paul to stop recommending pain control through medicine. He should offer his experience and his advice, and everyone should allow me the same. – Hide quoted text — Show quoted text ->Don’t worry about this Paul Hinman guy, almost all of his posts involve >something about recommending people drug themselves up to forget their >pain. Apparently he is psychologically unable to deal with real life and >uses meds just as a junkie uses illegal drugs.

Response:

that comment was uncalled for. you have no idea what some of us have been through when it comes to pain. i was in the hospital on drip/demand morphine for over 2 weeks. pyoderma gangrenosum is the most painful derm disease one can have, and i have a rather high threshold for pain. so before you shot your mouth off about what or why others take certain medications for pain, know what the hell your talking about first! jeff

Response:

i think you keep exploring and go to a doc, which maybe you finally have found one, that will keep looking and find the issue. it is not normal what is happening, there is an issue and you doc needs to be pushed to find it. jeff

– Hide quoted text — Show quoted text -> Greetings, > Am putting this into two groups (am not x-posting it however). Am feeling a > bit backed into a corner lately health wise, and am looking for advice, and > a little bit of venting. > I am a 32 year old male with a history of minor intestinal problems. Back in > 1999, I started to have a lot of blood in my stool, and especially in the > toilet (fresh blood, not digested). Was worried so I had a full GI workup. > First had a colonoscopy (no sedation, have an anxiety disorder when it comes > to being knocked out or heavily sedated). Went fine, some discomfort, but > got through it. It showed some fissures and hemmhoroids, but nothing > serious. > Then had a Endoscopy (again without sedation), but was unable to get through > it, the scope broke once he got it into the stomach, when he tried to put in > the second one, I lost it. Could not continue. > Then had an upper GI with small bowel follow through, was negative. > Was still having problems with bleeding and some bloating for the next few > years, but nothing that scared me, until 3 months ago. > Within the last 3 months I have started to have periods of tremendous pain > and discomfort that would fluctuate at various times between my lower > stomach and lower colon. At first I thought it was a stomach issue, so I had > an Endoscopy performed a few months ago (again no sedation), had a great doc > and got through it, only found a hiatal hernia and schlotsky’s ring. > Was happy with the negative result, and did not think it was anything > serious. However a month later the pain came back more intensely, and was > fluctuating in the same area again (mainly lower-mid bowel). Bleeding > started, and it was heavy at times, and I also noticed by stool changing in > shape (getting smaller, almost like it is being cut in half down the center > on the way out). The blood seems to be "piggybacking" the stool, i.e. coming > out at the end of the bowel movement, not before of during. > Have been to the ER twice in the last month, but they do not seem to be set > up for GI diagnostic situations, so I was prescribed Donetal both times, and > sent on my way (blood test results were normal, but the occult blood test > was positive). The Donetal really doesn’t work, only makes me feel drugged, > but doesn’t affect the digestive tract. > The ER doc stated he fully believed it is one of three things, either Colon > Cancer, Diverticulitis (or losis?), or IBD. I had been diagnosed with IBS in > the past (more like the doc could find nothing else in 99′, so he threw the > IBS dart). > Now have a colonoscopy scheduled for next week, same great doc that did my > endoscopy, so I am not too worried about the procedure itself, am just at a > point where I am a bit scared. > I have been going through a major roller coaster ride, when the pain comes > on, it not only affects me physically, but my mood as well. My wife has seen > these major mood swings lately because of the pain, and it has been > difficult. > At this point I just needed to vent, and also look for advice from others > who have been down a similar path. I honestly have no clue what is > happening, but it definitely feels serious. Will (hopefully) know next week, > but until then just wondering how to cope. > Many thanks, > Paul

Response:

You have no history here and do not know Paul’s story. Maybe you should find that out before making such outlandish and false statements. IBD can be quite painful and debilitating. There are many people with IBD who need narcotics to function on a daily basis. Those people who deal with that pain are heroes, not junkies. Just wait until you have to walk a mile in their shoes. mgbio – Hide quoted text — Show quoted text -> Don’t worry about this Paul Hinman guy, almost all of his posts involve > something about recommending people drug themselves up to forget their > pain. Apparently he is psychologically unable to deal with real life and > uses meds just as a junkie uses illegal drugs. > Maybe you need to leave Paul Hinman alone. You don’t know him and you > really have no idea what he has gone through. > This group is supposed to offer help and support to each other. Not > criticism and ridicule. Dealing with Crohn’s and UC is hard enough without > being hammered into the ground for it. > Dianna

Response:

To all those who have defended me and the one who considers me a drug addict. I may post frequently on the subject of medicated pain control, not because I am a psychological weekling but because so many seem to need some relief. My GI is a great fan of Sir William Osler a famous physician of the turn of the 19th/20th centuries. Sir William believed that patients had a right to expect pain relief from their physicians and my GI believes the same, in fact she has publicly stated that any doctor who refuses to prescribe narcotics is not doing his/her job. I don’t drug myself because I don’t have the legal authority to do so. A pain free patient is able to relax and enjoy life, family, hobbies, etc. Being pain free is almost as good as being cured. To you my posts may seem to be centred on pain control but I another favorite topic. Gastric reflux and how easily this can turn into esophogeal cancer, a disease with a high degree of mortality because it is seldom detected in time. The story of how my GI lady detected it in me and removed it ranks right with the miracles of old. It did require several endoscopies and biopsies but my biopsies have been clean so far. To me real life is cuddling my two grandchildren and feeling the support of friends both in the ng and outside the ng Thanx friends – Paul – Hide quoted text — Show quoted text ->Don’t worry about this Paul Hinman guy, almost all of his posts involve >something about recommending people drug themselves up to forget their >pain. Apparently he is psychologically unable to deal with real life and >uses meds just as a junkie uses illegal drugs. >You should talk. This psychological inabillity you have to believe that >you are not a god and there could be something wrong with you that >requires medical care severly impairs any credibility you have…or had. >Besides the fact that you know notthing about Paul, you have been >consistently childish & judgemental.

Response:

Don’t worry about this Paul Hinman guy, almost all of his posts involve something about recommending people drug themselves up to forget their pain. Apparently he is psychologically unable to deal with real life and uses meds just as a junkie uses illegal drugs. Maybe you need to leave Paul Hinman alone. You don’t know him and you really have no idea what he has gone through. This group is supposed to offer help and support to each other. Not criticism and ridicule. Dealing with Crohn’s and UC is hard enough without being hammered into the ground for it. Dianna

Response:

> Don’t worry about this Paul Hinman guy, almost all of his posts involve > something about recommending people drug themselves up to forget their > pain. Apparently he is psychologically unable to deal with real life and > uses meds just as a junkie uses illegal drugs.

You should talk. This psychological inabillity you have to believe that you are not a god and there could be something wrong with you that requires medical care severly impairs any credibility you have…or had. Besides the fact that you know notthing about Paul, you have been consistently childish & judgemental. — The one & only Violet Tigress The infamous Miss Kitty of Amblefolke… Deny! Deny! Deny! http://home.inreach.com/kismit AIM: Violet Tigress1

Response:

I’ve got similar problems, as everyone does who has GI issues since all the conditions seem to share general symptoms. I share your problem with sedation and it’s nice to see others able to go through the scopes without being drugged. The bleeding could easily just be from your hemorrhoids. The stool becoming smaller is one of the things I’ve not been able to figure out. Is it just skinnier? Shorter? If it’s skinnier maybe it’s from a narrowing, maybe caused by inflammation? If it’s shorter, maybe it’s simply due to a nervous sphincter that’s pulsing rather than relaxing and acting like a guillotine. I can’t wait until next week to hear about the colonoscopy results. If you find anything out about what causes the stool to become smaller please let me know. If it were colon cancer, I’d be inclined to expect something different from your story, like losing weight and feeling weaker, etc. Diverticulitis might make more sense. This would also help explain the hemorrhoids, but you didn’t mention a history of constipation. Don’t worry about this Paul Hinman guy, almost all of his posts involve something about recommending people drug themselves up to forget their pain. Apparently he is psychologically unable to deal with real life and uses meds just as a junkie uses illegal drugs. You demonstrate the ability to cope with difficult situations. Most of the people here told me that a colonoscopy without sedation would be living hell, but you’ve managed. You’re clearly a strong person and you are probably very close to finally having some answers. Take care

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You have no idea what Paul Hinman has been through so keep your stupid comments to yourself! As someone who fights everything everyone says here and even fights what his dr says you are the last person on earth to be giving advice to anyone. UM MOM Susan

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You sound like you are having a terrible time. While they are trying to diagnose the real problem they should get the pain control people involved. My pain team consisted of two anesthesiologists and a psychiatrist. they combined conventional and sustained release narcotics which take care of the pain and dexedrine which gets rid of the groggy effect, It has been a real blessing, May you find both comfort and the cause of your problem. Good luck – Paul – Hide quoted text — Show quoted text – >Greetings, >Am putting this into two groups (am not x-posting it however). Am feeling a >bit backed into a corner lately health wise, and am looking for advice, and >a little bit of venting. >I am a 32 year old male with a history of minor intestinal problems. Back in >1999, I started to have a lot of blood in my stool, and especially in the >toilet (fresh blood, not digested). Was worried so I had a full GI workup. >First had a colonoscopy (no sedation, have an anxiety disorder when it comes >to being knocked out or heavily sedated). Went fine, some discomfort, but >got through it. It showed some fissures and hemmhoroids, but nothing >serious. >Then had a Endoscopy (again without sedation), but was unable to get through >it, the scope broke once he got it into the stomach, when he tried to put in >the second one, I lost it. Could not continue. >Then had an upper GI with small bowel follow through, was negative. >Was still having problems with bleeding and some bloating for the next few >years, but nothing that scared me, until 3 months ago. >Within the last 3 months I have started to have periods of tremendous pain >and discomfort that would fluctuate at various times between my lower >stomach and lower colon. At first I thought it was a stomach issue, so I had >an Endoscopy performed a few months ago (again no sedation), had a great doc >and got through it, only found a hiatal hernia and schlotsky’s ring. >Was happy with the negative result, and did not think it was anything >serious. However a month later the pain came back more intensely, and was >fluctuating in the same area again (mainly lower-mid bowel). Bleeding >started, and it was heavy at times, and I also noticed by stool changing in >shape (getting smaller, almost like it is being cut in half down the center >on the way out). The blood seems to be "piggybacking" the stool, i.e. coming >out at the end of the bowel movement, not before of during. >Have been to the ER twice in the last month, but they do not seem to be set >up for GI diagnostic situations, so I was prescribed Donetal both times, and >sent on my way (blood test results were normal, but the occult blood test >was positive). The Donetal really doesn’t work, only makes me feel drugged, >but doesn’t affect the digestive tract. >The ER doc stated he fully believed it is one of three things, either Colon >Cancer, Diverticulitis (or losis?), or IBD. I had been diagnosed with IBS in >the past (more like the doc could find nothing else in 99′, so he threw the >IBS dart). >Now have a colonoscopy scheduled for next week, same great doc that did my >endoscopy, so I am not too worried about the procedure itself, am just at a >point where I am a bit scared. >I have been going through a major roller coaster ride, when the pain comes >on, it not only affects me physically, but my mood as well. My wife has seen >these major mood swings lately because of the pain, and it has been >difficult. >At this point I just needed to vent, and also look for advice from others >who have been down a similar path. I honestly have no clue what is >happening, but it definitely feels serious. Will (hopefully) know next week, >but until then just wondering how to cope. >Many thanks, >Paul

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Hi Paul, It sounds like you are long overdue for a colonoscopy to see what is going on with the lower end of your GI tract. If nothing is found, which is a possibility, then the next step would be for an upper GI with small bowel follow through and/or a CT Scan with IV contrast. Those tests will allow your GI to see what is happening in the area where the scopes can not reach, esp. your ileum, an area where if you have CD, a problem is, most likely to exist. IBD is very difficult to exist and often, a proper diagnosis takes years. Hopefully this is not what you have, but at this point it needs to be ruled out. Good luck! mgbio – Hide quoted text — Show quoted text – > Greetings, > Am putting this into two groups (am not x-posting it however). Am feeling a > bit backed into a corner lately health wise, and am looking for advice, and > a little bit of venting. > I am a 32 year old male with a history of minor intestinal problems. Back in > 1999, I started to have a lot of blood in my stool, and especially in the > toilet (fresh blood, not digested). Was worried so I had a full GI workup. > First had a colonoscopy (no sedation, have an anxiety disorder when it comes > to being knocked out or heavily sedated). Went fine, some discomfort, but > got through it. It showed some fissures and hemmhoroids, but nothing > serious. > Then had a Endoscopy (again without sedation), but was unable to get through > it, the scope broke once he got it into the stomach, when he tried to put in > the second one, I lost it. Could not continue. > Then had an upper GI with small bowel follow through, was negative. > Was still having problems with bleeding and some bloating for the next few > years, but nothing that scared me, until 3 months ago. > Within the last 3 months I have started to have periods of tremendous pain > and discomfort that would fluctuate at various times between my lower > stomach and lower colon. At first I thought it was a stomach issue, so I had > an Endoscopy performed a few months ago (again no sedation), had a great doc > and got through it, only found a hiatal hernia and schlotsky’s ring. > Was happy with the negative result, and did not think it was anything > serious. However a month later the pain came back more intensely, and was > fluctuating in the same area again (mainly lower-mid bowel). Bleeding > started, and it was heavy at times, and I also noticed by stool changing in > shape (getting smaller, almost like it is being cut in half down the center > on the way out). The blood seems to be "piggybacking" the stool, i.e. coming > out at the end of the bowel movement, not before of during. > Have been to the ER twice in the last month, but they do not seem to be set > up for GI diagnostic situations, so I was prescribed Donetal both times, and > sent on my way (blood test results were normal, but the occult blood test > was positive). The Donetal really doesn’t work, only makes me feel drugged, > but doesn’t affect the digestive tract. > The ER doc stated he fully believed it is one of three things, either Colon > Cancer, Diverticulitis (or losis?), or IBD. I had been diagnosed with IBS in > the past (more like the doc could find nothing else in 99′, so he threw the > IBS dart). > Now have a colonoscopy scheduled for next week, same great doc that did my > endoscopy, so I am not too worried about the procedure itself, am just at a > point where I am a bit scared. > I have been going through a major roller coaster ride, when the pain comes > on, it not only affects me physically, but my mood as well. My wife has seen > these major mood swings lately because of the pain, and it has been > difficult. > At this point I just needed to vent, and also look for advice from others > who have been down a similar path. I honestly have no clue what is > happening, but it definitely feels serious. Will (hopefully) know next week, > but until then just wondering how to cope. > Many thanks, > Paul

Response:

Greetings, Am putting this into two groups (am not x-posting it however). Am feeling a bit backed into a corner lately health wise, and am looking for advice, and a little bit of venting. I am a 32 year old male with a history of minor intestinal problems. Back in 1999, I started to have a lot of blood in my stool, and especially in the toilet (fresh blood, not digested). Was worried so I had a full GI workup. First had a colonoscopy (no sedation, have an anxiety disorder when it comes to being knocked out or heavily sedated). Went fine, some discomfort, but got through it. It showed some fissures and hemmhoroids, but nothing serious. Then had a Endoscopy (again without sedation), but was unable to get through it, the scope broke once he got it into the stomach, when he tried to put in the second one, I lost it. Could not continue. Then had an upper GI with small bowel follow through, was negative. Was still having problems with bleeding and some bloating for the next few years, but nothing that scared me, until 3 months ago. Within the last 3 months I have started to have periods of tremendous pain and discomfort that would fluctuate at various times between my lower stomach and lower colon. At first I thought it was a stomach issue, so I had an Endoscopy performed a few months ago (again no sedation), had a great doc and got through it, only found a hiatal hernia and schlotsky’s ring. Was happy with the negative result, and did not think it was anything serious. However a month later the pain came back more intensely, and was fluctuating in the same area again (mainly lower-mid bowel). Bleeding started, and it was heavy at times, and I also noticed by stool changing in shape (getting smaller, almost like it is being cut in half down the center on the way out). The blood seems to be "piggybacking" the stool, i.e. coming out at the end of the bowel movement, not before of during. Have been to the ER twice in the last month, but they do not seem to be set up for GI diagnostic situations, so I was prescribed Donetal both times, and sent on my way (blood test results were normal, but the occult blood test was positive). The Donetal really doesn’t work, only makes me feel drugged, but doesn’t affect the digestive tract. The ER doc stated he fully believed it is one of three things, either Colon Cancer, Diverticulitis (or losis?), or IBD. I had been diagnosed with IBS in the past (more like the doc could find nothing else in 99′, so he threw the IBS dart). Now have a colonoscopy scheduled for next week, same great doc that did my endoscopy, so I am not too worried about the procedure itself, am just at a point where I am a bit scared. I have been going through a major roller coaster ride, when the pain comes on, it not only affects me physically, but my mood as well. My wife has seen these major mood swings lately because of the pain, and it has been difficult. At this point I just needed to vent, and also look for advice from others who have been down a similar path. I honestly have no clue what is happening, but it definitely feels serious. Will (hopefully) know next week, but until then just wondering how to cope. Many thanks, Paul

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